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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Tuesday March 30th 7:00 PM
 
Amy B Scher, is an energy therapist, expert in mind-body healing, and the bestselling author of "How to Heal Yourself When No One Else Can". 
https://www.eomega.org/workshops/teachers/amy-b-scher
https://www.soundstrue.com/blogs/authors/amy-b-scher

 

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

April 6th: Care Partner Support Group Meeting with Jay Stratoudakis
 
April 13th:
Lori Quinn, EdD. PT Topic: Parkinson's Physical Activity / Coaching Program, 

April 20th: Parkinson's Support Group for People with PD and Care Partners

April 27th Dr. Soania Mathur, BSc, MD, CCFP,UnshakeableMD, MJFF Patient Council co-chair; co-founder PD Avengers soaniamathur@unshakeablemd.com
 
May 4th Care Partner Support with Jay Stratoudakis
 
May 11th Ezekiel Powdar/ Rachel Chasse (Program Manager) Healthmode Study/Retro-PD Study
Digital Medicine:Future for Healthcare,Research and Parkinson's Disease https://healthmode.com

 
May 18th Persons w/PD + care partners support group
 
May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging
Parkinson’s Body and Mind Program
Revised COVID Safe  Greenwich YMCA

 
Please note that given the current environment of people still receiving their vaccines, we continue to run all PD classes free of charge until  May 1st .
 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Thursday: Tai Chi w/Ken Starting  4/1 @ 11 am
Friday: Yoga w/ Francesca  @ 10:00am
Tai Chi with Ken Dolan is back at Cos Cob Park
Sound Shore Dr, Cos Cob, CT 06807


Starting Monday, March 29th at 10 AM,
$12 each class.
RSVP Debbie Silverthorn
 debrasilverthorn1@gmail.com


 Ken began studying TaiChi/Qigong in 1996. He has been teaching regularly scheduled TaiChi/Qigong classes in the Stamford-Greenwich area for 13 years as well as private sessions. He also co-teaches a stress management class at the Bennett Cancer Center. His classes emphasize relaxing with focused breathing and coordinated movement.
 
Studies have shown that Tai Chi improves balance and motor control in Parkinson's disease. 
Hey there Mind Body Family!
 
I hope this email finds you all well! I want to thank you all for showing up and showing out no matter what. It's been a wild year but we've made it through. Few bumps along the way, but things seem to be clearing *fingers crossed*. The dedication you guys have to movement and your health is amazing! 
 
Spring is here MBF (Mind Body Fam)! A season of rebirth and growth! I'd like to inform you all that I'm now offering In-home and Online personal and group training for all of you, your family and anyone else ready to learn more about their temples and what they're capable of! Contact me for scheduling and pricing.
 
PD Boxing is still in person and online at the Greenwich YMCA with Toni,
Classes are on Mondays 10am & Wednesdays 9am. I should have some evening classes soon. I'll keep you guys posted.
 
For other Mind Body/Shaker's Anon affiliated workouts please check Lynn's Mind Body email. If you're not on the mailing list, please reach out to either Lynn or I and we'll get that squared away for you.
 
Also, beginning April 1st; you can find me teaching more classes at the Greenwich YMCA, spread the word and I hope to see some of you guys there as well! 
 
Yoga
Monday at 6pm
 
HIIT (High Intensity Interval Training)
Tuesday and Thursdays at 8am
 
MMA (Mixed Movement Arts)
Wednesdays at 6pm
  
These classes aren't PD specific but open to all, they are all advanced classes. 
 
Beginning April 19th I'll also be instructing a Teen HIIT (High Intensity Interval Training) class on Mondays and Wednesdays at 5PM.
 
Don't forget, we still have Mind Body PD boxing on Wednesdays and Fridays at 2pm every week (link below).
 
Zoom Link
https://us02web.zoom.us/j/7064312737
 
Toni
 
That was a long one, hope you made it through in one piece.
 
With love,
Reiniel Fructuoso
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
Live Broadcast: Wednesday, April 14
12 pm ET / 11 am CT / 10 am MT / 9 am PT

Join us as Dr. Friedman shares small, but impactful ways that you can adjust your home, your daily routine, and your medication regimen, in order to make each day a bit smoother and more enjoyable.
 
APDA PATIENT AID SCHOLARSHIP PROGRAM
 
Relief for People living with Parkinson’s in Connecticut
The APDA Connecticut Chapter offers a patient aid scholarship program designed to provide financial support to people with Parkinson’s disease (PD) and their families.  Approved applicants will be eligible to be granted a $300 one-time payment per calendar year (January-December).  Funds are limited and will be awarded on a first-come basis. This Patient Aid Scholarship Program is intended for individuals with PD in need of financial assistance for programs, services and/or activities, such as:
  • Exercise/Wellness: Supports costs associated with exercise/wellness programs and activities that focus on evidence-based treatment to improve and maintain the health for persons with PD.  This is for exercise-related activities and classes such as, but not limited to: boxing, dancing, yoga, tai-chi, physical therapy, occupational therapy, etc.
  • Medication: Defray expenses not covered by other programs or health insurance.
  • Respite/Adult Day Program:  Subsidizes the cost of respite/adult daycare for the person with Parkinson’s disease.  Respite/Adult Day Care enables care providers to take time away from their responsibilities to rejuvenate.
  • Assistance at Home: Covers expenses for home services, such as housework, light yard work, snow shoveling, and other tasks that a person with PD or a care provider is not able to complete.
  • Transportation: Covers costs associated with travel to and from doctor’s appointments, support groups, and other events for those who are no longer driving or for whom driving is significantly limited due to the effects of Parkinson’s disease.
  • Childcare Assistance:  Subsidizes the cost of childcare for people with Parkinson’s.
  • Adaptive Equipment:  Offsets costs associated with the purchase and/or installation of equipment or modifications needed in the home to aid in activities of daily living, such as, but not limited to: grab bars, handrails, widening doorways, bathroom accessibility, etc.
 
CLICK HERE FOR THE APPLICATION
to learn more about these grants.apdact@apdaparkinson.orgor email  860-248-9200 Please call
 
Amplify Parkinson’s Advocacy and Email Capitol Hill  
This week, hundreds of advocates participated in the Parkinson’s Policy Forum, a community event hosted by The Michael J. Fox Foundation with Presenting Partner Parkinson’s Foundation — and today many of them are holding virtual meetings with legislators to ask for an increase in federal investment in Parkinson’s research. And you can join these advocates (from wherever you are!) to help amplify the community’s message by emailing your legislators now. 

 
Take Action Now
 
Right now, members of Congress are working on the federal budget for the new fiscal year starting October 1. They need to hear directly from their constituents (you) about the importance of increasing funding for Parkinson’s research.
In recent years, we’ve seen incredible progress in Parkinson’s drug development, but we still need better treatments and a cure. The Parkinson’s Research Program at the Department of Defense is key to advancing critical research progress. 

Email your Senators and Representative now and ask them to invest in Parkinson’s breakthroughs.
The Parkinson’s Policy Forum brings together community members and researchers from across the country for policy briefings and advocacy opportunities. For more information and stay engaged, visit the Forum online.
 

Myths about Levodopa (Ask the MD Video)

New Study: Parkinson’s Foundation Center of Excellence Sheds Light on COVID Vaccine and Parkinson’s


Results from an early study examining Parkinson’s disease (PD) and the COVID-19 vaccine are in. According to this new study, the COVID-19 vaccination is not known to interfere with the current PD therapies and is recommended for people with Parkinson’s unless there is a specific contraindication.
 
The study took place at the Nijmegen Parkinson Center in the Netherlands, a Parkinson’s Foundation Center of Excellence. These experts closely studied the entire development and approval process of the Pfizer/BioNTech and Moderna vaccines. Keep reading to find out what the study means for the PD community.
 
 
For the latest in Parkinson’s and COVID-19 please visit Parkinson.org/COVID19 and read Parkinson’s & the COVID-19 Vaccine. For state-by-state vaccine information, please visit the CDC: COVID-19 Vaccine.

Registration is now open for our April webinar—

Health Disparities and Parkinson's:
Understanding the Role of Trust

WITH ALTAF SAADI, MD, MSC, AND CONSUELO H. WILKINS, MD, MSCI

Tuesday, April 6, at 1 pm MDT
(12 pm PDT, 2 pm CDT, 3 pm EDT)

REGISTER FOR THE WEBINAR

If you're unable to make it at the scheduled time, register anyway, and we'll send you a recording as soon as it's available.

ABOUT THE WEBINAR

Racial differences in Parkinson’s treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust?

Join us for an interactive session with Dr. Altaf Saadi and Dr. Consuelo H. Wilkins where we will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities. 

If you run into any issues while registering, please email us at contact@dpf.org or call 866-358-0285

Columbia Parkinson’s Disease Support Group

Our next meeting Tuesday, March 30, 2021 3:30-4:30PM. PLEASE NOTE THIS MEETING WILL BE HELD VIRTUALLY VIA ZOOM AND WE WILL CONTINUE TO MEET THE LAST TUESDAY OF EVERY MONTH. This meeting we will have an open discussion about day to day life with PD, discussing what to do about driving, why dental health and other day to day experiences! see attached flyer. If you would like to attend please be sure to register with me. The ZOOM meeting info is below:
Elizabeth Delaney is inviting you to a scheduled Zoom meeting.
 
Topic: PD Support Group
Time: Feb 23, 2021 03:30 PM Eastern Time (US and Canada)
 
Join Zoom Meeting

https://columbiacuimc.zoom.us/j/94192260647?pwd=UW00Z0xqL091bjZuNTBCM0JvK0FhUT09
 
Meeting ID: 941 9226 0647
Passcode: 134356
One tap mobile
+16465588656,,94192260647# US (New York)

   Michael J. Fox Foundation coverage
 
After Record Growth in 2020, DRINKS Celebrates 39th Anniversary of Wine Insiders [PR Newswire – March 18, 2021] 
 

The ‘Aha’ Moments That Helped Me See a Life Beyond Parkinson’s [Parkinson’s News Today – March 18, 2021 – By Lori DePorter] 
 
Parkinson’s disease coverage      
 

Foundation Hosting Virtual, Contactless Moving Day Events [Parkinson’s News Today – March 18, 2021 – By Marisa Wexler] 
 

Changes in Immune Cells of Blood in Sleep Disorder Patients Tied to Parkinson’s [Parkinson’s News Today – March 18, 2021 – By Aisha I Abdullah, PhD] 
 

Dramatic Results from an Obesity Drug May Point Toward Multiple Uses in Neurology [Neurology Today – March 18, 2021 – By Richard Robinson] 

Annovis’s Novel Approach to Parkinson’s Shows Early Promise [Scrip – March 17, 2021 – By Andrew McConaghie] 
 

Researchers Find a Better Way to Identify Cells and Understand the Mechanisms of Diseases [News Medical Life Sciences – March 17, 2021 – By Emily Henderson, B.Sc.] 

Subscribe to Parkinson’s newsletters


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PD Avengers
Action Alerts

Parkinson’s News Today
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APDA Connecticut Chapter
https://lp.constantcontactpages.com/su/JLqy59x/CTsignup

Parkinson’s Foundation
https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
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