Copy
"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Digital Medicine: the Future for Healthcare,
Research, and Parkinson's
 
Just as technology has transformed communication, shopping, and banking, healthcare is undergoing its own digital transformation. In this presentation, Rachel Chasse, Senior Manager at MindMed, will discuss what this means for the future of health research and care. She will talk about how digital products can be used for passive remote monitoring of symptoms, and how this is helpful for both patients and clinicians. She will also discuss an opportunity to become involved in a research study involving digital products in Parkinson's.
 
Rachel Chasse's career began in Alzheimer's and dementia research, where she was shaped by the experiences of patients and families. From there, she has worked in a variety of medical research settings and is currently at MindMed investigating how technology can advance care. Rachel is also the Director of Innovation at the Digital Medicine Society (DiMe), a non-profit professional society dedicated to advancing the safe, effective, ethical, and equitable use of digital medicine to optimize human health.
  
Jamileh Jemison
Head of Clinical Development, HealthMode 
is a physician-scientist with specialty training in genetics and pediatrics, who has led clinical research in oncology, opioid use disorder, autism, and autoimmune disorders. JJ worked in clinical operations and development at Boston Biomedical Inc., Finch Therapeutics, HealthCore, and Pear Therapeutics before joining HealthMode in 2019. 
https://www.digbiomarkers.com/

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

May 18th Persons w/PD + care partners support group
 
May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging


July 13th Dr. Meytin is scheduled to speak to us. He has asked us to suggest topics that we would like him to discuss. Please email them to hagerbrant@gmail.com 
 
Are you interested in being a part of a "PD Journal Club" with Dr. Meytin to discuss recently published PD research articles. There are 2 members of Shaker's Anonymous who are interested in helping to lead the group along with Dr. Meytin. Planning to meet on a monthly basis. If interested in being a part of this group please email
hagerbrant@gmail.com

 
There will be a Parkinson's Body and Mind Program Open House Saturday June 5th (Time TBD)  
at the Greenwich YMCA 
Parkinson’s Body and Mind Program
Revised COVID Safe  Greenwich YMCA

 
Please note that given the current environment of people still receiving their vaccines, we continue to run all PD classes free of charge until  May 1st .
 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Tuesday: Tai Chi w/Ken in person and online @ 11 am

Friday: Yoga w/ Francesca  @ 10:00am
Tai Chi with Ken Dolan is back at Cos Cob Park
Sound Shore Dr, Cos Cob, CT 06807


Mondays, at 10 AM, $12 each class.
RSVP Debbie Silverthorn
 debrasilverthorn1@gmail.com


 Ken began studying TaiChi/Qigong in 1996. He has been teaching regularly scheduled TaiChi/Qigong classes in the Stamford-Greenwich area for 13 years as well as private sessions. He also co-teaches a stress management class at the Bennett Cancer Center. His classes emphasize relaxing with focused breathing and coordinated movement.
 
Studies have shown that Tai Chi improves balance and motor control in Parkinson's disease. 
Ray Fructuoso online workout classes  
 
 
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom


Just go to the following link on your iPhone, laptop or desktop.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
Let's all enjoy some fun and fresh air
At the Shakers Anonymous Spring Social Affair!
 
At Waveny Park in just
ONE WEEK we will be
So please bring a chair to sit under the trees.


Add to my Calendar


 
Please Join Us!
Sunday, May 16th from 1:30 to 4 PM at Waveny Park, New Canaan
 
Agenda includes:
Lynn Hagerbrant updates on exciting new developments
Optional short nature walk
Exterior tour of the Waveny Castle
Optional participation in Tai Chi demonstration led by Ken Dolan
 
Water and snacks will be provided
 
HOPE TO SEE YOU THERE!
Any questions?  Call Debbie Silverthorn  (203) 524-4993
You’re Not Alone: Tips for Building Connections in the Parkinson’s Community
  Thursday, May 20, 2021
  12 to 1 p.m. ET
 
REGISTER NOW
Our panelists will discuss loneliness and isolation that can happen in Parkinson’s disease. We'll cover ways to manage these issues through community connections and share information on the Parkinson’s Buddy Network. Bring your questions for our experts!
Michael J. Fox Foundation coverage
 
Parkinson’s Disease: Brigham and Women’s Scientists Identify Five Genetic Loci Linked to Rapid Disease Progression [Medical Research – May 6, 2021 – By Clemens R. Scherzer]
 
Survey: Patients with Parkinson’s Disease Frequently Report Benefits From Medical Cannabis [NORML – May 6, 2021]
 
Parkinson’s disease coverage
 
What Barriers to Vaccination Impact People With Parkinson Disease[American Journal of Managed Care – May 6, 2021 – By Matthew Gavidia]
 
Parkinson's Disease Progression Linked to Five Variants in Genome-Wide Survival Study [Genome Web – May 6, 2021]
 
Potentially Self-Tuning DBS Device Monitors Brain Activity of Daily Life[Parkinson’s News Today – May 7, 2021 – By Marta Figueiredo]
 
New ‘NeuroInsight’ Fellowship Program Awarded €4.7M [Parkinson’s News Today – May 7, 2021 – By Forest Ray]
 
Specific Gut Bacteria Linked with Protein Aggregation Characteristic of Parkinson’s, Alzheimer’s Diseases [Genetic Engineering and Biotechnology News – May 6, 2021]
 
What Parkinson’s Disease Patients Reveal About Experiencing Art [Penn Today – May 6, 2021]
Parkinson's Foundation

Join us next week for a free online educational event, Parkinson's, Sleep and Me. Learn about how Parkinson's disease affects sleep, and ways you can get a better night's sleep while living with PD.
 
This program is open to people with Parkinson's, their family, friends and the community. Invite your family and friends!
Register Now

Who: Our speaker is Aleksandar Videnovic, MD, MSc, Director, Division of Sleep Medicine at Massachusetts General Hospital, a Parkinson's Foundation Center of Excellence.
When: Tuesday, May 11, 2021; 1 p.m. to 2:30 p.m. ET
Where: Online Zoom Meeting. Once registered, you'll receive an email giving you the link to watch the program on the date and time written above.
How to attend: RSVP now at parkinson.org/sleepMA. This is a free event, but registration is required.
 
For more information, contact Melody McLaughlin at (781) 552- 3790  or NewEngland@parkinson.org.
Last May, Parkinson’s Foundation and Columbia University Irving Medical Center sent out a survey to understand how people living with Parkinson’s disease were affected by the coronavirus pandemic. Results from that survey highlighted the widespread use of virtual and telehealth services (You can read the survey results here). We would like to again hear from you about how you have continued to manage during the pandemic.
 
This survey will focus on your experiences getting medical care in the last 12 months related to vaccinations, in-person appointments and telehealth use and satisfaction. This survey consists of six sections. It should take 20 minutes to complete.
This survey is for people living with Parkinson’s disease. If needed, a care partner may help a person with Parkinson’s disease complete the survey. Your responses are entirely voluntary and will remain confidential.
 
Please complete the survey at the link provided in this email https://redcap.parkinson.org/surveys/?s=YTLH3KJLMH
 
If you have any questions about this study, please reach out to Matthew Surface, Study Coordinator, at ms6015@cumc.columbia.edu

 
LET’S KEEP MOVING WITH APDA: PHYSICAL THERAPY & EXERCISE
With host Tami Rork DeAngelis, PT, DPT, GCS and special guests Dianna Daly, Dance for PD® instructor, and Sarah Palmer, MS, Exercise Physiologist
Thursday, May 27, 2021 at 1:00 pm ET / 12:00 pm CT / 11:00 am MT / 10:00 am PT
 
Description
This latest edition of our special series hosted by physical therapists at APDA’s National Rehabilitation Resource Center at Boston University focuses on the connection between physical therapy and other forms of movement. Hear from experts in the fields of physical therapy, dance, and fitness, specific to people with PD, about how various forms of exercise and movement can work together with physical therapy to improve your balance, gait, fitness level, and more. Get your questions answered live during the program!
Very often, the emotional, social, physical, and psychological needs of those diagnosed with YOPD are different from those diagnosed at an older age. You might be soaring in your career, expecting a baby, raising multiple school-age children at home, and/or getting ready to buy your first house. These are different concerns than those who are diagnosed much later in life have. That’s why we want to shine a spotlight on YOPD. We want you to have the education, resources, and support you need to live well with Parkinson’s no matter your age.
Join us on Saturday, June 26, where you will have the opportunity to learn from and interact with Parkinson’s experts and people living with YOPD on a wide range of topics that are unique to your situation. From the biology and etiology of YOPD to treatments, reinvention, exercise, and more, you’ll leave with a concrete plan on how to live well with Parkinson’s for many years to come.

REGISTER TO JOIN US
 
View the event agenda to learn more about sessions and speakers.
The Victory Summit virtual event goes beyond the screen. You will have the opportunity to ask questions and engage with fellow people with Parkinson's all from the comfort of your own home using a computer, tablet, or phone. Plus, you’ll meet some of our Ambassadors who are available to support you at any time. Register to join us.
 
 

Clinical trials that might be of interest to you.
Click on the study title to learn more
.

 

PPMI: A New Horizon for Parkinson's Research

 

Study in Parkinson Disease of Exercise

 

A Study to Evaluate the Efficacy and Safety of Intravenous Prasinezumab in Participants With Early Parkinson's Disease

 

FoxBioNet: ECV (Extracellular Vesicle) 004

 

Subscribe to Parkinson’s newsletters


Shakers Anonymous
https://www.shakersanonymous.org/subscribe-to-newsletter

Michael J. Fox Foundation
https://www.michaeljfox.org/newsletter

PD Avengers
Action Alerts

Parkinson’s News Today
https://parkinsonsnewstoday.com/

APDA Connecticut Chapter
https://lp.constantcontactpages.com/su/JLqy59x/CTsignup

Parkinson’s Foundation
https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
Copyright © 2021 Shaker's Anonymous, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Email Marketing Powered by Mailchimp