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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Tuesday April 13th 7:00 PM
Topic: Parkinson's Physical Activity / Coaching Program.
 
Lori Quinn, PT, EdD - Associate Professor of Movement Science & Kinesiology
Department Chair, Biobehavioral Sciences
Adjunct Associate Professor of Rehabilitation and Regenerative Medicine (Physical Therapy), Columbia University Irving Medical Center
212-678-3424
lq2165@tc.columbia.edu

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

April 20th: Parkinson's Support Group for People with PD and Care Partners

April 27th Dr. Soania Mathur, BSc, MD, CCFP,UnshakeableMD, MJFF Patient Council co-chair; co-founder PD Avengers soaniamathur@unshakeablemd.com
 
May 4th Care Partner Support with Jay Stratoudakis
 
May 11th Ezekiel Powdar/ Rachel Chasse (Program Manager) Healthmode Study/Retro-PD Study
Digital Medicine:Future for Healthcare,Research and Parkinson's Disease https://healthmode.com

 
May 18th Persons w/PD + care partners support group
 
May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging
Parkinson’s Body and Mind Program
Revised COVID Safe  Greenwich YMCA

 
Please note that given the current environment of people still receiving their vaccines, we continue to run all PD classes free of charge until  May 1st .
 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Tuesday: Tai Chi w/Ken in person and online @ 11 am

Friday: Yoga w/ Francesca  @ 10:00am
Tai Chi with Ken Dolan is back at Cos Cob Park
Sound Shore Dr, Cos Cob, CT 06807


Starting Monday, March 29th at 10 AM,
$12 each class.
RSVP Debbie Silverthorn
 debrasilverthorn1@gmail.com


 Ken began studying TaiChi/Qigong in 1996. He has been teaching regularly scheduled TaiChi/Qigong classes in the Stamford-Greenwich area for 13 years as well as private sessions. He also co-teaches a stress management class at the Bennett Cancer Center. His classes emphasize relaxing with focused breathing and coordinated movement.
 
Studies have shown that Tai Chi improves balance and motor control in Parkinson's disease. 

Ray Fructuoso online workout classes  
 
 
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom


Just go to the following link on your iPhone, laptop or desktop.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888
 


 

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
Tuesday, April 14th at 2pm via zoom
Lapham Community Center
New Canaan CT 
 
Lynn Hagerbrant - Co-Founder of Shaker’s Anonymous support group for people with Parkinson’s Disease and their care partners. Co-Founder of Parkinson’s Body and Mind Program. on the Michael J Fox Foundation for Parkinson’s Research Patient Council.
 
Chuck Hendricks -  Co -Founder of Parkinson’s Body and Mind Program and member of Shaker’s Anonymous
 
Jim Stratoudakis, Ph.D.
 
Member Patient and Family Advisory Council for the Hartford Health Care David and Rhoda Chase Family Movement Disorders Center.
 
Retired Clinical Psychologist, Associate Clinical Professor of Psychiatry and Behavioral Sciences. George Washington University School of Medicine and Health Sciences.  
 
A member of Shaker’s Anonymous support group and Parkinson’s Body and Mind Program.
 

www.shakersanonymous.org
 
Topic: “Developing a Parkinson’s Plan of Action Including Community Resources for People with Parkinson’s Disease"
 
If interested email
hagerbrant@gmail.com for zoom link
 
Test your knowledge of Parkinson’s disease during Parkinson’s Awareness Month. Help us spread the word to #KnowMorePD throughout April!
 

 
A Conversation with
Michael J. Fox: On Testing the Limits of Optimism
 
  Tuesday, April 20, 2021
  5 p.m. ET  
 
JOIN US
Save your spot to join Michael J. Fox and Foundation Co-Founder Debi Brooks as they sit down to discuss Michael’s latest memoir, No Time Like the Future: An Optimist Considers Mortality.

Have you read the book yet? If not, 
download a free excerpt here. Then, register for the event to listen as Michael explores the answer to his own question: “can you be an optimist and a realist at the same time?”
Five PD Avenger Actions in April for Parkinson's Awareness 
 
#1 30 Day Challenge
 
Recruit Family, Friends, Care Team...
The challenge is for you to recruit ONE person to join PD Avengers EACH DAY of APRIL. 
 
If all 2,911 PD Avengers were successful, we would have 87,330 members by May. 
 
Our goal of one million members by the end of 2022 remains. Why a million? Watch This
 
Can we count on you?
 
#2 Red Letter Campaign
 
 
If you haven't yet, get your RED LETTERS and send them to the White House and show you #GiveADime about Parkinson's!"
 
We've already sent more than 20,000 letters to the White House asking the President to;
 
Make tele-medicine permanently covered by Medicare 
 
Ban Paraquat, Trichlorethylene and other toxic chemicals proven to increase the risk of Parkinson's disease 
 
10x increase in Parkinson's Research dollars from the Federal Government
 
We want to send 100,000 red letters by the end of APRIL! 
 
Order your letters and find out more at www.endingpd.org
 
WATCH: To the right is a video of a webinar featuring PD Avengers co-founder Larry Gifford interviewing the original PD Avengers Dr. Ray Dorsey, Dr. Michael Okun, Dr. Bas Bloem and Dr. Todd Sherer, also the authors of Ending Parkinson's.
We Give A Dime: Ending Parkinson's Disease in 2021
 
#3 Ask U.N. to observe World Parkinson's Day
 
Parkinson's is the fastest growing neurological condition in the world yet the United Nations does not observe 11-April as World Parkinson's Day. We want to change that. Write a letter to your UN Ambassador respectfully asking the United Nations to observe World Parkinson's Day.
PD Avengers send a letter to the United Nations re: World Parkinson's Day and Week.
 
 
PD Avenger from Uganda takes his letter to the U.N. - PD ...

Kabugo Hannington is an advocate whose mother had Parkinson's and was labeled a witch. He never wants anyone with pD to have to endure that. When the PD Avengers asked members to follow our lead by writing to UN Ambassadors respectfully...

Read more
www.pdavengers.com
 
 
#4 Register: World Parkinson Congress Virtual
 
 
The WPC Virtual: Advancing Science, Care, & Living with Parkinson’s online congress will take scientific updates and connectivity to a new level. We are thrilled to announce this first ever virtual Congress from the WPC that will rival the quality and content of what we offer in person. 
 
Program dates: Monday - Friday, May 17 - 21, 2021.
 
Topics presented during this five-day virtual program will include updates on: Basic Science, Clinical Science, Treatment Options, Comprehensive Care, and Living with Parkinson’s. The program will also include two 4-part wellness series as part of the week, looking at PT wellness and Speech/Voice wellness. Talks will be forward thinking and delivered by both well recognized and up and coming leaders in the Parkinson’s space. 
 
Registration to the first ever World Parkinson Congress Virtual in May is only $25.00 US. 
 
 
#5 Share Your PD Story on Video
 
 
Maybe you’ve been living with Parkinson’s for years, and the pandemic has changed some of the things you’ve always relied on. Or you’ve had a really tough year, but you’re still hanging in there. You’ve adapted, made new connections. Perhaps you started doing Zumba over Zoom, or learned to love gardening. You’ve overcome challenges you never could have imagined and you have hope.
 
Whatever your story, whatever your experience with Parkinson’s. 
 
You Are Not Alone
 
There’s a whole world of support out there. People who care. People walking in shoes like yours. People who want to help, or to be heard, just like you.
 
Reach out, and find friendship and community.
Join us for a live event on 11 April for a continuous stream showcasing the Global Parkinson's community, ideas and inspiration. Explore how to be together, apart. Connect with people who understand your triumphs, challenges, and hopes, because they’re on a similar journey too.
Send your YOUTUBE link or video on why you became a PD AVENGER and we'll include it in our montage for the 11-April YOUTUBE event. Here's a sample video.
 
PD Avengers
 
11-April YouTube Event #TogertherApart
 
A YouTube event with people from around the world and all walks of life who have a connection to Parkinson’s. Learn how others have overcome challenges, found support, connected during lockdown, and how they manage their condition. Share your concerns, celebrate each others’ triumphs, and share in dreams and hopes for the future.
 
It doesn’t stop there! Actions are powerful. Pick up the phone, reach out to someone who needs a helping hand. Invite them to the next quiz night, or virtual coffee. Or just say hello. Show you care, and that together we’re part of something bigger.
 
When?
11-April Parkinson's Awareness Day - All Day Long
 
Who it’s for?
This is for you. Whether you have Parkinson’s, or care about someone who does. You might be a researcher, maybe you work in wellness and support. You might be one person on your own, or a whole family, charity, or group. Anyone with a connection to Parkinson’s, anywhere in the World.
 
How do I attend?
https://www.youtube.com/channel/UCHLDhVy4lptbsD0msTY_C0g/featured
 
Together we’re stronger. Together with Parkinson’s. Together, apart.
 
 
Please send YouTube links to videos by April 6th if you would like your video to be considered for the #TogetherApart YouTube stream 
 
Please go to our Partner Page and click on the logos and visit their websites to discover amazing events happening everyday in April for World Parkinson's Awareness. 
 
What can you do this April for PD Awareness Month? You can sing, move, share, learn, and more! Here are just a few ideas:
 

Share Your Story: By sharing your personal PD story you help raise awareness and you can provide support to someone recently diagnosed, perhaps unsure or afraid of what is to come; or provide hope and camaraderie to the care partner who is struggling to balance it all. Visit our website today to view stories shared by others and use our Story Sharing tool to add yours. We know every story is powerful and we can’t wait read yours. Also, follow APDA on Facebook, Instagram to see some special stories we’ll be featuring throughout the month!
 
 Get Tips and Tricks for Living Well with PD*: You won’t want to miss the next episode of Dr. Gilbert Hosts with special guest Dr. Joseph Friedman on April 14. They will discuss small, but impactful ways that you can adjust your home, your daily routine, and your medication regimen, in order to make each day a bit smoother and more enjoyable. You’ll get to ask your questions live during the program, so don’t miss it!  Register today to reserve your spot.
 
DONATE
 
 
 
Join Us
Expert Q&A: Building Your Care Team
Join Dr. Suketu M. Khandhar for our Expert Q&A this Tuesday, April 13, 2021 at 12pm PDT to learn how to develop a Parkinson's care team that supports you through your journey with the disease. This webcast will help you understand the different types of providers that can help you manage Parkinson's symptoms so that you can leverage the power of a multidisciplinary care team.
 
Register today!
 
Our Expert Q&A series is held every second Tuesday of the month in 2021. Join us to learn about topics in Parkinson's disease from the experts. Our Expert Q&A series is supported by Kyowa Kirin and Amneal.
 
REGISTER
 
 
Expert Q&A: Building Your Care Team
Date: Tuesday, April 13

Time: 12PM PDT
 
Location: Zoom Webinar
 
REGISTER
 
Parkinson’s disease coverage MJFF Media Monitoring -

Phase 2 Trial of Cognitive Treatment NYX-458 Resumes [Parkinson’s News Today – April 9, 2021 – By Diana Campelo Delgado]
 

Health Canada Allows Start of DA01 Trial Testing Cell Therapy [Parkinson’s News Today – April 9, 2021 – By Diana Campelo Delgado]
 

Blue Rock Therapeutics to Start Cell Therapy Trial for Parkinson’s Disease [Clinical Trials Arena – April 8, 2021]
 

Mouse Study Reveals Brain Pathways Linked to Parkinson’s [Medical News Today – April 8, 2021 – By Timothy Huzar]
 

Multidimensional Rehab Program Found to Improve Functional, Cognitive Disability in Parkinson’s Disease [AJMC – April 8, 2021 – By Matthew Gavidia]
 

Risks to Anesthetists from Chemical Linked to Parkinson’s Disease [The Guardian – April 8, 2021 – By Mike Nathanson, PhD]
 

Neurocrine Biosciences to Present Data From Its Neurology Portfolio at the American Academy of Neurology’s 73rd 2021 Virtual Meeting [Neurocrine Biosciences, Inc. – April 8, 2021]

 
Volunteering for Parkinson’s Research:
What to Know and Expect

1 to 2 p.m. ETThursday, April 15, 2021
 
Our panelists will discuss different types of clinical research and how to find the best study for you. We’ll cover potential benefits and risks of participation and how volunteering for research can become a critical part of the Parkinson’s journey. Bring your questions for our experts!

The MJFF webinar series has been made possible through the leadership of members of our Parkinson’s Disease Education Consortium in conjunction with The Albert B. Glickman Parkinson’s Disease Education Program. Support from these partners allows us to furnish high-quality educational content to the Parkinson ’s community while maintaining our commitment to allocate donor dollars to high-impact research. Editorial control of all content published by The Michael J. Fox Foundation rests solely with the Foundation.

Clinical trials that might be of interest to you.

Click on the study title to learn more
.

Registry of Deep Brain Stimulation With the VERCISE System: Vercise DBS Registry


A Pilot Biomarker Study Assessing Alpha-synuclein Aggregates Across Biofluid Reservoirs in Patients With Synucleinopathies


PPMI: A New Horizon for Parkinson's Research


Posiphen Dose-Finding Biomarker Study in Early Alzheimer's and Parkinson's Patients


Rapid dEvice Testing pROtocol for Parkinson's Disease


A Study to Evaluate the Efficacy and Safety of Intravenous Prasinezumab in Participants With Early Parkinson's Disease


Intelligibility Assessment for Parkinson's Disease

 

Subscribe to Parkinson’s newsletters


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https://www.shakersanonymous.org/subscribe-to-newsletter

Michael J. Fox Foundation
https://www.michaeljfox.org/newsletter

PD Avengers
Action Alerts

Parkinson’s News Today
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APDA Connecticut Chapter
https://lp.constantcontactpages.com/su/JLqy59x/CTsignup

Parkinson’s Foundation
https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
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