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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Tuesdays at 7:00 PM

June 1st Jay Stratoudakis, Care Partner Support.  This meeting is for care partners only.

Hello Fellow Care Partners!
Our monthly Care Partner's Meeting is this Tuesday, June 1, at 7:00pm.

As you know, our group is strong and open to sharing experiences and resources. If you don't know, join us Tuesday for a lively conversation!

Our conversation this month includes a round of sharing great experiences that have made a difference in the life of our partner and in our life.

 
Open House Event
Saturday, June 5th
10-11:30am
Free of charge and open to all
 
Reduce symptoms, sharpen your mind, and stay connected
 

Interested in joining the PD Body & Mind Program, but not sure if it’s for you?   Meet our Parkinson’s specialty certified instructors and try our classes for free.

 

Rock Steady Boxing
Yoga
Tai Chi
 
Advance registration requested
Christine Lavin at clavin@gymca.org 203-869-1630 ext 210.
or
Lynn Hagerbrant at hagerbrant@gmail.com
Upcoming Meditation series information for website and newsletter.  Flyer prepared my CMP attached.
 
Starting June 10th -- Community Mindfulness Meditation Series presented by the Community Mindfulness Project's co-founder Erika Long
By popular demand, as a follow up to her April 20th presentation to Shakers Anonymous support group, Erika is offering to persons living with Parkinson's Disease and their loved ones a series of four 30-minute sessions, at 7pm on Thursdays: June 10th, June 17th, June 24th and July 1st.  Each session will have an introduction with some science, and then a practice that will be particularly supportive for persons with PD and their family members.  There will be a heavy emphasis on community and agency - exploring practices, noticing which ones fit best, and adapting as needed.
 
The Community Mindfulness Project (CMP) is offering these classes at no charge, but there is a cost for them to provide the program.  You are invited, but not required, to contribute to CMP to help offset the cost of the series.  CMP can accept donations via:
*check mailed to Community Mindfulness Project, PO Box 1713, New Canaan, CT 06840; or
*credit card at CommunityMindfulnessProject.org There is a "Donate" button on the home page.
   
Erika's Bio:
Erika Long is a co-founder and board member of the Community Mindfulness Project.  She believes, "If you can breathe through it, you can live through it"
 
Erika began meditating while working in finance on Wall Street, and found that it helped her see more clearly, respond more wisely and relate more closely to the people and events in her life.

For the past twenty years, she has followed the teachings of Jon Kabat-Zinn (Mindfulness-Based Stress Reduction), Joseph Goldstein, Bob Thurman, Sharon Salzberg, Gil Fronsdal and many others; and traveled in India with Shantum Seth (a student of Thich Nhat Hanh).  She has also studied non-violent communication and believes in its power to create community.

Erika is a Certified Mindfulness Teacher uner MMTCP (the Meditation and Mindfulness Teachers Certification Program led by Tara Brach and Jack Kornfield) in partnership with UC Berkeley's Greater Good Science Center, and is a Certified Mindfulness Teacher - Professional Level, International Mindfulness Teachers Association.  She is particularly fascinated by the neuroscientific research on meditation and mindfulness and feels passionately about expanding access to the benefits of meditation and mindfulness.
 

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

June 8th Roy Alcalay, MD will be speaking to our group instead of Nancy Lombard. He will be talking to us about "PD Research and Other Important Updates".


July 13th Dr. Meytin is scheduled to speak to us. He has asked us to suggest topics that we would like him to discuss. Please email them to hagerbrant@gmail.com 
 
Are you interested in being a part of a "PD Journal Club" with Dr. Meytin to discuss recently published PD research articles. Planning to meet on a monthly basis. If interested in being a part of this group please email
hagerbrant@gmail.com

 
Parkinson’s Body and Mind Program
Greenwich YMCA

 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Tuesday: Tai Chi w/Ken in person and online @ 11 am

Friday: Yoga w/ Francesca  @ 10:00am
Ray Fructuoso online workout classes  
 
 
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom


Just go to the following link on your iPhone, laptop or desktop.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net

Michael J. Fox Foundation coverage

  • The Parkinson's Foundation Was Bracing for the Worst in 2020. Instead, Giving Surged [Inside Philanthropy – May 26, 2021 – By Paul Karon]
https://www.insidephilanthropy.com/home/2021/5/26/the-parkinsons-foundation-was-bracing-for-the-worst-in-2020-instead-giving-surged
  • Swarm Learning for Decentralized and Confidential Clinical Machine Learning [Nature – May 26, 2021 – By Stefanie Warnat-Herresthal, Hartmut Schultze, et al.]
https://www.nature.com/articles/s41586-021-03583-3
 
Parkinson’s disease coverage
  • Electrical Muscle Stimulation Increased Strength, Endurance [Parkinson’s News Today – May 27, 2021 – By Steve Bryson PhD]
https://parkinsonsnewstoday.com/2021/05/27/electromyostimulation-increases-muscle-strength-endurance-in-early-parkinsons/
  • Developing a Cell Therapy for Parkinson’s Disease [News-Medical.net – May 26, 2021]
https://www.news-medical.net/news/20210526/Developing-a-Cell-Therapy-for-Parkinsone28099s-Disease.aspx
  • Parkinson's Disease - Low Blood Flow in the Brain May Be an Early Sign [HealthNewsDigest – May 26, 2021]
www.healthnewsdigest.com/news/Disease_420/Parkinson-s-disease.shtml
  • Isakson Raising Money for Neurological Disease Research [Associated Press – May 26, 2021]

https://apnews.com/article/health-468101aeb36e73853e421b449e57891a

Parkinson’s Revolution is an indoor cycling experience that combines passion, determination and community to generate awareness and advance our mission toward a cure. Join us across the country on June 12 (in-person or virtually) for a high-energy ride that will make you perspire while being inspired!

Your ride will work up a sweat AND generate the funds we need to make lives better for people living with Parkinson's.  Register to join the movement and we will provide you with the tools you need to exceed your fundraising and fitness goals. Who will you ride for?
Calling Patients and Care Partners! Join the Parkinson’s Buddy Network
The absence of regular social activities during COVID-19 has been tough, especially on people and families with PD. Designed to help combat this isolation, the Parkinson’s Buddy Network is MJFF’s new online forum helping you to build meaningful, worldwide connections.
GET STARTED TODAY
 
Join Our Webinar Deep Brain Stimulation: Is It Right for Me or My Loved One?
Thursday, June 17 at 12 p.m. ET
Register Now
 
Leadership Changes Drive MJFF’s Next Phase of Research and Patient Engagement
The Foundation announced organizational changes that will allow us to deepen our engagement with the patient, family and researcher communities, while complementing our ambitious research agenda to end PD.
Read the Announcement 
 
 
Urge Your Representative to Support Parkinson’s Research
There’s one last chance for your Representative to support critical Parkinson’s research at the Department of Defense. Ask them to register their support via the House Appropriations Committee database between now and June 3. Take Action Now
 
News in Context: LRRK2 Therapy Reports Positive Findings
After an announcement of positive study results, a Parkinson’s drug to lower activity of the protein LRRK2 — which is higher in some people with PD — will now move into a later-stage trial.  Learn More
 
MJFF’s Asian Pacific American Community Reflects on Navigating Life with Parkinson’s
Meet a doctor, an ultra-athlete and a policy advocate, as we honor the experiences of Asian American Pacific Islanders living with and caring for people with Parkinson’s.
Read Their Stories
 
Looking to Improve Your Fitness Routine? This Study is Helping
Maintaining regular exercise is one of the best ways to manage PD symptoms, but many find it difficult to follow a routine. This MJFF-funded study is exploring roadblocks to physical activity through a patient-centered program.  Find Out More

SPEAKER:
Melita Petrossian, MD
Pacific Neuroscience Institute

START DATE:6/7/2021
START TIME:1:00 PM EDT
DURATION:60 MINUTES

GRIT: PASSIONS, PERSEVERANCE, AND PARKINSON’S

WITH ANGELA DUCKWORTH

Tuesday, June 1, at 10 am MDT
9 am PDT, 11 am CDT, 12 pm EDT, 5 pm BST

REGISTER FOR THE WEBINAR

If you're unable to make it at the scheduled time, register anyway, and we'll send you a recording as soon as it's available.

ABOUT THE WEBINAR

In Angela Duckworth’s book Grit, she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this webinar we will discuss whether human behavior is constant or circumstantial, how behavior change really happens, and the mindsets that help people succeed regardless of challenges. 

Join us for this session where Angela will share what she's learned from having a father who lived with Parkinson’s.

If you run into any issues while registering, please email us at contact@dpf.org or call 866-358-0285.

Join us for the next episode of Dr. Gilbert Hosts when we speak with Dr. Carlie Tanner who will share her expertise on the effects of the environment on the risk of developing Parkinson’s disease.
 
Live Broadcast: Wednesday, June 16 12 pm ET
 
REGISTER NOW
 
ABOUT OUR SPEAKER: CARLIE TANNER, MD, PHD
Caroline M. Tanner, MD, PhD, FAAN, trained in neurology and movement disorders at Rush University in Chicago. She received her Ph.D. from the University of California, Berkeley. She directed clinical research at the Parkinson’s Institute from 1990-2013. She is now Professor of Neurology at the University of California, San Francisco and the Associate Director at the Parkinson’s Disease Research Education and Clinical Center at the San Francisco VA.
 
Dr. Tanner’s clinical practice specializes in movement disorders. Her research interests include descriptive epidemiology, environmental and genetic determinants, biomarkers, early detection, non-motor disease features and trials for the secondary prevention, disease modification and symptomatic treatment of movement disorders and neurodegenerative diseases. She is past co-chair of the Parkinson Study Group (PSG) and has conducted numerous clinical trials with PSG and others. Dr. Tanner and her colleagues have identified associations between exposures including certain pesticides, solvents and persistent environmental pollutants and increased risk of Parkinson’s disease, and identified gene-environment interactions. She is the principal investigator of the Fox Insight online study. She serves on the executive steering committee of the Parkinson’s Progression Markers Initiative (PPMI) study and leads the prospective online data collection.

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https://www.michaeljfox.org/newsletter

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https://www.parkinson.org/node/4899

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https://danceforparkinsons.org/contact-us
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