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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Tuesdays at 7:00 PM
May 18th Persons w/PD + care partners support group, topics for discussion to be emailed to Lynn
at
hagerbrant@gmail.com

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging


July 13th Dr. Meytin is scheduled to speak to us. He has asked us to suggest topics that we would like him to discuss. Please email them to hagerbrant@gmail.com 
 
Are you interested in being a part of a "PD Journal Club" with Dr. Meytin to discuss recently published PD research articles. There are 2 members of Shaker's Anonymous who are interested in helping to lead the group along with Dr. Meytin. Planning to meet on a monthly basis. If interested in being a part of this group please email
hagerbrant@gmail.com

 
Parkinson’s  Body  and  Mind Program
Open House Event

Reduce symptoms, sharpen your mind, and stay connected
YMCA of Greenwich
50 East Putnam Avenue

 
Are you interested in joining the Parkinson’s Mind and Body Program at the YMCA of Greenwich, but not sure if it’s for you?
 
Come try any or all the classes free!
Open House
Saturday, June 5th 10-11:30am
 
Classes include:
Rock Steady Boxing
Yoga
Tai Chi

All classes are instructed by fitness professionals who are trained to work with people with PD.
 
For questions please contact: Christine Lavin at clavin@gymca.org
Lynn Hagerbrant at hagerbrant@gmail.com 
hagerbrant@gmail.com
Parkinson’s Body and Mind Program
Greenwich YMCA

 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Tuesday: Tai Chi w/Ken in person and online @ 11 am

Friday: Yoga w/ Francesca  @ 10:00am
Ray Fructuoso online workout classes  
 
 
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom


Just go to the following link on your iPhone, laptop or desktop.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
Lynn will be participating in a MJFF webinar on a panel discussion: 
Michael J. Fox Foundation patient webinar on building community connections.
 
The event is Thursday, May 20 from 12 to 1 p.m. ET
 
Register for the event with the following link:
https://www.michaeljfox.org/webinar/youre-not-alone-tips-building-connections-parkinsons-community
 
PD AVENGERS FOCUS: Women and PD
 
The issues and complications around Parkinson's disease and YOPD women has been a whispered topic for decades. That whisper has become a roar. 
 
Following a report on women and PD at the World Parkinson Congress in Kyoto by the Parkinson Foundation people began to take notice. 
 
This year, The Davis Phinney Foundation has a webinar series featuring YOPD womenCon P de Parkinson's 
 
Twitchy Woman blogger and PD Avenger Sharon Kirsher is great advocate for women with PD. In addition to her blog, she's featured in this great article from PCORI on the topic. 
 
 
 
PD Avengers Championing 'Women and PD' - PD Avengers

The International Women's Day 2021 theme this year was about #ChooseToChallenge to challenge and call out gender bias and inequality. With the sentiment that 'From challenge comes change'. One the PD Avengers founding members, Richelle Flanagan,...

Read more
www.pdavengers.com
 
CHECK THIS OUT! 
PMD Alliance Book Club: Ending Parkinson's Disease 
 
 
 
Book Club: Ending PD Now

Calling all readers, researchers, advocates, and people impacted by Parkinson’s disease! You’re invited to a book club featuring Ending Parkinson’s Disease: A Prescription for Action. Join us for a four part mini-series with the authors...

Read more
www.pmdalliance.org
 
 
 
 
Sleep well

If you've got Parkinson's disease and find it difficult to get to sleep, or stay asleep, you're not alone. 90% of people living with the condition are similarly affected. Identifying the root causes of sleep problems are the first steps to...

Read more
www.epda.eu.com
 
The EPDA asked PD Avenger Matt Eagles to talk about what it is like to sleep with a movement disorder.
 
Here's a link to a handy EPDA guide on how to sleep well with Parkinson's.
Sleep Well w/ Parkinson's
Click Here
 
Sleep Well - Matt Eagles (UK) Sleep and movement disorders
Please go to our Partner Page and click on the logos and visit their websites to discover amazing events happening everyday around the world.
 
Michael J. Fox Foundation coverage

Gain Therapeutics Presents Positive In Vitro & In Vivo Data on Its Orally Bioavailable Brain Penetrant Star Compounds for the Treatment of GBA1 Parkinson’s Disease & Related α-synucleopathies at the XXVI IAPRD World Congress [GlobeNewswire – May 3, 2021]
 

Parkinson’s disease coverage

Why Parkinson's Patients See Ghosts: Scientists Discover Abnormality in Frontal-Temporal Region of Sufferers' Brains that Can Cause Hallucinations [The Daily Mail – May 1, 2021 – By Jack Newman]
 
Brain-on-Chip Unravels Mechanisms Behind Parkinson's Disease [Lab Worldwide – May 2, 2021 – By Alexander Stark]
 
Task Force Favors Personalized Research, Treatment Over Grouping [Parkinson’s News Today – May 3, 2021 – By Steve Bryson PhD]
 
Sharing Our Stories Reveals That We Are Not Alone [Parkinson’s News Today – April 30, 2021 – By Dr. C]
Parkinson's Foundation
 
Join us for Beyond the Diagnosis: Surgical Options, a virtual education program for people with Parkinson’s and their loved ones. Learn about how Parkinson’s symptoms may change over time and surgical options for treating them. We will also hear from a patient advocate's experience with surgical treatment.
This program is open to people with Parkinson's, their family, friends and the community.
Register Now

What: After several years of good symptom management, controlling Parkinson’s disease may become more challenging. We will provide information on self-advocacy and tools for building support systems to cope with new challenges.
Who: Our speakers include:
– Duarte G. Machado, MD, Director of Program Excellence and Recognition at David & Rhoda Chase Family Movement Disorders Center
– Lisa Dolishny, Patient Advocate
When: Thursday, June 10, 2021; 10 a.m. to 11:30 a.m. ET
Where: Online Zoom Meeting. Once registered, you'll receive an email giving you the link to watch the program on the date and time written above. Register by May 24 to be mailed a welcome kit including program agenda, relevant fact sheets and more!
How to attend: RSVP now at Parkinson.org/BTDconn. This is a free event, but registration is required.
For more information, contact Melody McLaughlin at (781) 552-3790 or NewEngland@parkinson.org.  

To view more online programs for the Parkinson's community, visit parkinson.org/PDHealth.
Please join us for the next episode of Dr. Gilbert Hosts -- an interactive webinar series where APDA’s Chief Scientific Officer, Dr. Rebecca Gilbert, speaks with experts in the Parkinson's disease (PD) community and opens the conversation up to your questions. 

On Wednesday, June 16, Dr. Gilbert will speak with Dr. Carlie Tanner (bio below), who will share her expertise on the effects of the environment on the risk of developing PD. The impact of the environment is a very popular topic that we get many questions about and is currently getting a lot of attention in the PD community.
 
Dr. Gilbert Hosts: Parkinson’s Research & the Environment  
 
Wednesday, June 16, 2021
12:00 PM ET
11:00 AM CT
10:00 AM MT
9:00 AM PT
Register Today
This Live Broadcast will be streamed via YouTube. After registering, you will receive a confirmation email containing information about how to watch.
We hope you'll join us! 
You can also find out more about the connection between PD and environmental factors by checking out these APDA resources: 

Environmental Research at the NIH: Hear what Dr. Koroshetz, director of the NINDS, says about PD research at the NIH, including the relationship between PD and the environment. 
Pesticides and PD: Dr. Gilbert delves into the topic of pesticides and other environmental concerns that might increase risk of PD. She discusses rural living, specific pesticides, other pollutants, veterans exposure to pesticides, and more.
Genes and Environmental Factors: Check out this interesting presentation about genes and the environment and how they interact to potentially cause PD. 
Military exposure to pesticides: Veterans may be at an increased risk of PD because of their service. Evidence suggests that one cause of PD may be exposure to pesticides or herbicides (i.e. Agent Orange). This booklet explains that connection, provides information about PD and its treatments, as well as the benefits available to veterans who have PD. 

Clinical trials that might be of interest to you.
Click on the study title to learn more
.

 

 

Registry of Deep Brain Stimulation With the VERCISE System: Vercise DBS Registry

 

Genotypic Influences on Network Progression in Parkinson's Disease

 

PPMI: A New Horizon for Parkinson's Research

 

Light Therapy for PD - Dose Selection

 

A Study of E2027 in Participants With Dementia With Lewy Bodies (DLB) or Parkinson's Disease Dementia (PDD) With or Without Amyloid Copathology

Subscribe to Parkinson’s newsletters


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Parkinson’s Foundation
https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
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