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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Tuesday April 27th 7:00 PM
 

Soania Mathur, MD, is a former writer for Verywell Health covering Parkinson's disease. Dr. Mathur was diagnosed with young-onset Parkinson's disease at the age of 27 at the start of her medical career. During her 12 years of family medicine before she had to take a medical leave from her practice, she cared for a number of patients with the same diagnosis.

Now she is a dedicated speaker, writer, educator, and Parkinson's advocate. She speaks passionately at the local and international level, about the challenges of adjusting physically and emotionally and the coping strategies available to patients.

Dr. Mathur is an active speaker with the Parkinson’s Society of Canada at patient-directed conferences and also serves as a resource for education projects. She works with The Michael J. Fox Foundation for Parkinson’s Research and serves on their Patient Council. She is a member of The Brian Grant Foundation Advisory Board that helps to create educational programming.

Dr. Mathur has a special interest in helping educate the youngest affected by the stress of this chronic disease. To help facilitate dialogue between children and their loved ones, she has authored two books: "My Grandpa's Shaky Hands" and "Shaky Hands–A Kid’s Guide To Parkinson’s Disease."   soaniamathur@unshakeablemd.com

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

May 4th Care Partner Support with Jay Stratoudakis
 
May 11th Ezekiel Powdar/ Rachel Chasse (Program Manager) Healthmode Study/Retro-PD Study
Digital Medicine:Future for Healthcare,Research and Parkinson's Disease https://healthmode.com

 
May 18th Persons w/PD + care partners support group
 
May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging
Parkinson’s Body and Mind Program
Revised COVID Safe  Greenwich YMCA

 
Please note that given the current environment of people still receiving their vaccines, we continue to run all PD classes free of charge until  May 1st .
 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Tuesday: Tai Chi w/Ken in person and online @ 11 am

Friday: Yoga w/ Francesca  @ 10:00am
Tai Chi with Ken Dolan is back at Cos Cob Park
Sound Shore Dr, Cos Cob, CT 06807


Mondays, at 10 AM, $12 each class.
RSVP Debbie Silverthorn
 debrasilverthorn1@gmail.com


 Ken began studying TaiChi/Qigong in 1996. He has been teaching regularly scheduled TaiChi/Qigong classes in the Stamford-Greenwich area for 13 years as well as private sessions. He also co-teaches a stress management class at the Bennett Cancer Center. His classes emphasize relaxing with focused breathing and coordinated movement.
 
Studies have shown that Tai Chi improves balance and motor control in Parkinson's disease. 

Ray Fructuoso online workout classes  
 
 
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom


Just go to the following link on your iPhone, laptop or desktop.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888
 


 

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
Let's all enjoy some fun and fresh air
At the Shakers Anonymous Spring Social Affair!
 
At Waveny Park in just 3 weeks we will be
So please bring a chair to sit under the trees.
Please Join Us!
Sunday, May 16th from 1:30 to 4 PM at Waveny Park, New Canaan
 
Agenda includes:
Lynn Hagerbrant updates on exciting new developments
Optional short nature walk
Exterior tour of the Waveny Castle
Optional participation in Tai Chi demonstration led by Ken Dolan
 
Water and snacks will be provided
 
HOPE TO SEE YOU THERE!
Any questions?  Call Debbie Silverthorn  (203) 524-4993

Is there a link between COVID-19 and Parkinson’s disease?
 
Although extremely rare, Parkinson’s-like symptoms have occurred in a few people with COVID-19. This phenomenon has researchers investigating whether there is a link between SARS-CoV-2 and Parkinson’s disease.
 
Since the start of the COVID-19 pandemic, scientists have continued to search for information about how SARS-CoV-2 affects the body.
At this point, researchers and healthcare professionals know that the effects extend beyond the respiratory system. SARS-CoV-2 can impact 
other organsTrusted Source, including the heartTrusted SourcebrainTrusted SourcekidneysTrusted Source, and skinTrusted Source.
In November 2020, an article published in The Lancet Neurology reported that up to 
65%Trusted Source of people with COVID-19 have experienced hyposmia, a loss or change in their sense of smell, which is also a symptom of Parkinson’s disease. Read More…
Our next Columbia Parkinson’s Disease Support Group will be meeting Tuesday, April 27, 2021 3:30-4:30PM. PLEASE NOTE THIS MEETING WILL BE HELD VIRTUALLY VIA ZOOM AND WE WILL CONTINUE TO MEET THE LAST TUESDAY OF EVERY MONTH. This meeting we will have an open discussion about Coping with Parkinson’s: Making Meaning and Adapting to Life with PD. See attached flyer. If you would like to attend please be sure to register with me. The
ZOOM meeting info is below:
 
Time: Feb 23, 2021 03:30 PM Eastern Time (US and Canada)
 
Join Zoom Meeting
https://columbiacuimc.zoom.us/j/94192260647?pwd=UW00Z0xqL091bjZuNTBCM0JvK0FhUT09
 
Meeting ID: 941 9226 0647
Passcode: 134356
One tap mobile
+16465588656,,94192260647# US (New York)
 
Meeting ID: 941 9226 0647
Find your local number: https://columbiacuimc.zoom.us/u/aeCXOTQsd
Columbia University Department of Neurology’s Division of Movement Disorders, in
partnership with Project: Music Heals Us (PMHU) and Manhattan School of
Music (MSM), will be offering interactive ZOOM concerts each month to movement
disorders patients.
 
MSM: May 3, 2021 10-11AM EST
 
PMHU: May 12, 2021 4-5PM EST
 
regular bi-monthly concerts the first Monday (6-7PM) and Third Thursday (4-5PM) of
each month
 
Participants should have their own iPad or listening device, and use of headphones is
encouraged
 
Registration is required as space is limited. For more information or to register, please
contact Elizabeth Delaney at ead2179@cumc.columbia.edu or 212-305-5779
APRIL IS PARKINSON'S DISEASE
AWARENESS MONTH!
 
 
Don't Miss Out!
If you have not already done so, please register for the APDA Connecticut Symposium to commemorate the last week of Parkinson's Disease Awareness Month!
 
REGISTER TODAY

Parkinson's, Sleep and Me

Join us for a free online educational event, Parkinson's, Sleep and Me. Learn about how Parkinson's disease affects sleep, and ways you can get a better night's sleep while living with PD.
This program is open to people with Parkinson's, their family, friends and the community. Invite your family and friends!

 

Who: Our speaker is Aleksandar Videnovic, MD, MSc, Director, Division of Sleep Medicine at Massachusetts General Hospital, a Parkinson's Foundation Center of Excellence.

When: Tuesday, May 11, 2021; 1 p.m. to 2:30 p.m. ET

Where: Online Zoom Meeting. Once registered, you'll receive an email giving you the link to watch the program on the date and time written above.
How to attend: RSVP now at 
parkinson.org/sleepMA. This is a free event, but registration is required. Register by April 23 to be mailed a welcome kit including program agenda, relevant fact sheets and more!
For more information, contact Melody McLaughlin at (781) 552-3790 or 
NewEngland@parkinson.org.
Debbie Lucchesi  was diagnosed with Parkinson’s disease (PD) seven years ago. What started as a tremor in her leg began to spread to her hand. As a fitness professional she knew the power of exercise, and credits movement like indoor cycling and weightlifting for keeping her symptoms at bay. In 2020 she recruited a team of friends to ride with her as part of Parkinson’s Revolution. Debbie’s Dynamos clipped in as one of the top fundraising teams across the country!
This year, Debbie is back and ready to gear up to beat PD. Will you join her and riders around the country?
 
 
The Movement Begins With You.
To learn more about the Parkinson's Foundation and the impact you make on the lives of people living with Parkinson's, visit Parkinson.org. Have any questions? Click here to contact us.
 
LIVING WELL DURING PARKINSON'S AWARENESS MONTH
 
We are inspired every day by the members of our community who share the ways they live well and give of their time and expertise to help others do the same. We kicked off April with an event led entirely by people living with Parkinson’s, and have celebrated Parkinson's Awareness Month with Ambassador spotlights on Steve HoveyPatti Burnett, and Gretchen White, and a metaphor medicine poetry session with Wayne Gilbert on World Parkinson's Day.
 
We're also excited to announce the arrival of our new Healthy Parkinson's Communities introductory toolkit, a go-to guide for Parkinson's leaders and community members seeking to organize their community and create change. This two-part collection of tools includes a roadmap to understanding your community, building your network, and achieving your goals as you build a healthy Parkinson's community.
Check out more resources from April below.

METAPHOR MEDICINE WITH WAYNE GILBERT

If you’ve been lucky enough to watch Wayne Gilbert perform his poetry, you know how special it is. On Sunday, April 11, to celebrate World Parkinson’s Day, Wayne performed his "parkie" poems live on YouTube as part of a 24-hour initiative called Together, apart. Watch the recording of Wayne's inspiring poetry performance.
THE VICTORY SUMMIT® VIRTUAL EVENT:
HOW TO LIVE WELL WITH PARKINSON'S
 
 

Session recordings available now

On April 2, 2021, we held our first ever The Victory Summit® Virtual Event led entirely by people living with Parkinson’s! From sessions on nutrition, exercise, and communication to a Parkinson’s poetry performance by the talented Wayne Gilbert, this event was full of expertise and experience from the people who know Parkinson’s best. If you weren’t able to join the live event, you can watch all the recordings on demand and access additional event resources here.

Dance for PD is committed to supporting our global community and encouraging people living with Parkinson’s to keep dancing during a time when in-studio classes may not be available.
 
Click on a button below to start dancing with us.

 
Michael J. Fox Foundation coverage  
 
 
ATX TV Honors Michael J. Fox [The Austin Chronicle – April 22, 2021 – By Richard Whittaker]
 
Holbrook Life Partners with Wilkins Parkinson’s Coalition to Bring Awareness to Parkinson’s Disease Research [PR Newswire – April 22, 2021]
 
Parkinson’s disease coverage      
 
PharmaTher Seeking Trial of Ketamine for Levodopa-Induced Dyskinesia [Parkinson’s News Today – April 23, 2021 – By Aisha I Abdullah, PhD]
 
The Morning Show: How Can Canadians Protect Themselves from Parkinson’s Disease [Global News Canada – April 22, 2021 – By Carolyn MacKenzie]
 
Long-Term Benefit for DBS in Treating Parkinson’s Motor Symptoms [MedScape – April 22, 2021 – By Erik Greb]
 
ADS-5102 Reduces Time with Dyskinesia and Increases ON Time in Parkinson’s Disease [Neurology Advisor– April 22, 2021 – By Amit Akirov, MD]
 
Altered Neural Functioning in Parkinson’s Patients Changes the Way Art is Perceived and Valued [News Medical Life Sciences – April 23, 2021 – By Emily Henderson, B.Sc.]

 
The Parkinson’s Progression Markers Initiative is on a mission to understand who’s at risk for Parkinson’s. More women join — but the study needs the majority of its 100,000 participants to be men aged 60 and up. Whether you have Parkinson’s or not, take a short survey and help meet the 100,000-man challenge today.
GET STARTED

Clinical trials that might be of interest to you.
Click on the study title to learn more
.

 

Home Based Tele-exercise for People With Chronic Neurological Impairments


A Clinical Study of NLY01 in Patient's With Early Parkinson's Disease


Cognitive-motor Training for PD


Study in Parkinson Disease of Exercise

Subscribe to Parkinson’s newsletters


Shakers Anonymous
https://www.shakersanonymous.org/subscribe-to-newsletter

Michael J. Fox Foundation
https://www.michaeljfox.org/newsletter

PD Avengers
Action Alerts

Parkinson’s News Today
https://parkinsonsnewstoday.com/

APDA Connecticut Chapter
https://lp.constantcontactpages.com/su/JLqy59x/CTsignup

Parkinson’s Foundation
https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
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