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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
Our Next Meeting
Tuesday April 6th 7:00 PM
 
Care Partners. The group is going to be led by Diane DeMain RN since Jay is recovering from hip surgery.
 
Diane is a Parkinson's Support group leader out of Greenwich Hospital.

 

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.
Tuesdays at 7:00 PM

April 13th: Lori Quinn, EdD. PT Topic: Parkinson's Physical Activity / Coaching Program, 

April 20th: Parkinson's Support Group for People with PD and Care Partners

April 27th Dr. Soania Mathur, BSc, MD, CCFP,UnshakeableMD, MJFF Patient Council co-chair; co-founder PD Avengers soaniamathur@unshakeablemd.com
 
May 4th Care Partner Support with Jay Stratoudakis
 
May 11th Ezekiel Powdar/ Rachel Chasse (Program Manager) Healthmode Study/Retro-PD Study
Digital Medicine:Future for Healthcare,Research and Parkinson's Disease https://healthmode.com

 
May 18th Persons w/PD + care partners support group
 
May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging
Parkinson’s Body and Mind Program
Revised COVID Safe  Greenwich YMCA

 
Please note that given the current environment of people still receiving their vaccines, we continue to run all PD classes free of charge until  May 1st .
 
The new boxing track and padded mats are in place and we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  
 
We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

Registration
All participants must register for the class via the YMCA of Greenwich App
click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.

Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:  Rock Steady Boxing w/Toni  @ 10:00am
Wednesday:  Rock Steady Boxing w/Toni  @ 9:00am
NEW Thursday: Tai Chi w/Ken Starting  4/1 @ 11 am
Friday: Yoga w/ Francesca  @ 10:00am
Tai Chi with Ken Dolan is back at Cos Cob Park
Sound Shore Dr, Cos Cob, CT 06807


Starting Monday, March 29th at 10 AM,
$12 each class.
RSVP Debbie Silverthorn
 debrasilverthorn1@gmail.com


 Ken began studying TaiChi/Qigong in 1996. He has been teaching regularly scheduled TaiChi/Qigong classes in the Stamford-Greenwich area for 13 years as well as private sessions. He also co-teaches a stress management class at the Bennett Cancer Center. His classes emphasize relaxing with focused breathing and coordinated movement.
 
Studies have shown that Tai Chi improves balance and motor control in Parkinson's disease. 

Ray Fructuoso online workout classes  

Wednesdays at 2:00 PM on Zoom.
Fridays at 2:00 PM on Zoom

 
Just go to the following link on your iPhone, laptop or desktop.

Classes are free/Donations are welcome https://venmo.com/code?user_id=19602005169274888
 
Reiniel Fructuoso
Mixed Movement Artist/Certified Personal Trainer
Aether Fitness
p: 4754446311  m: 2035702425

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net

WEBINAR SERIES: YOPD COUNCIL

The Third Thursday of Every Month 3 pm EDT

Because of the unique challenges of living with YOPD, we want to increase awareness of YOPD, provide resources, and share stories to help people with YOPD live better today.

One way we’ve decided to do that is to create a YOPD Council. This council has been convened so members can share their experiences of living with YOPD. Join us each month for this ongoing webinar series.

Sign up for the webinar series here

Test your knowledge of Parkinson’s disease during Parkinson’s Awareness Month. Help us spread the word to #KnowMorePD throughout April!
 
Start The Quiz
Can creativity help people with Parkinson’s disease (PD)? Could the swipe of a paintbrush, the refrain of a song, or the steps of a dance routine actually help someone who is living with a chronic, neurological disorder?  The very broad and simplified answer is, yes.

Of course there are medications to help manage the many symptoms of PD, and thankfully so, as they can make a tremendous difference in the quality of life for people living with PD. But many want to find additional ways to improve their day-to-day life, to mitigate symptoms, to possibly keep some symptoms at bay for longer. 

Not only can creative pursuits help you physically, but they can also help mentally, emotionally and socially. And most are safe for people of all abilities to try. Below are some APDA resources to help you learn more: 

Music-based therapies: Dancing, singing and other types of movement set to music can help exercise the body and lift the spirits. Learn more about music-based therapies in this installment of A Closer Look where Dr. Gilbert discusses how music therapy utilizes rhythm, movement, voice and creativity to try to improve PD symptoms, or check out some of the programs below:

 
  • Sing Loud for PD: This free online singing class for people with PD and their care partners can help strengthen your voice, assist with voice control, volume and breathing techniques, and it’s also a lot of fun! Registration is required, but rest assured that no singing experience (or talent!) is needed for this fun online vocal class. Weekly classes are currently scheduled through May 12.
  • Expert discussion on the benefits of dance: In this edition of Dr. Gilbert Hosts, we talk with David Leventhal, founding teacher and program director of Dance for PD, an award-winning, research-backed global program. David explains the joys and benefits of dance, and how the program creatively addresses symptom-specific concerns related to balance, cognition, motor skill, depression and physical confidence.
  • PD Movement Lab Every Friday you can join Pamela Quinn, a trained dancer and person living with PD (and also a cast member ofAPDA’s Look Closer public service announcement!and learn tools that allow people with PD to rediscover mobility and greater physical freedom.
  • Dance for PD PRO If you’re looking for a challenge, Dance for PD PRO is a rigorous, all-standing dance class for those seeking a level of mastery, comprehension, and focus. The class integrates a blend modern, ballet, jazz, improvisation and more.
Art-based programsEven if you’ve never picked up a paintbrush before, you can still give art-based therapies a try. Learn more about how and why art can help people with PD in this blog post from Dr. Gilbert. 
  • Connecting Through Art: APDA launched this signature program in 2019 to foster the incorporation of art into the lives of people living with PD and encourage socialization through a series of creative activities. Connecting Through Art is being offered virtually and coordinated by our local Chapters.  Please check our virtual events calendar for a program that you can join and evoke your inner Rembrandt. 
In addition to any symptomatic benefits, many of these creative therapies can increase happiness, satisfaction, and camaraderie. If you try a creative activity that you enjoy and find beneficial as a person living with PD, we’d love to hear about it at apda@apdaparkinson.org

In addition to the programs mentioned above, APDA has a wealth of virtual events coming up, especially with Parkinson's Disease Awareness Month just a few days away. Here’s a great one for you to check out: 

Remember, APDA is here for you every step of the way. Please do not hesitate to reach out via our APDA helpline at (800-223-2732)  or email us at apda@apdaparkinson.org.
 
Upcoming Education Programs
There is a lot to know about Parkinson's disease and the Parkinson's Foundation is here for you at every stage of your journey. We offer community-based education programs to support you – and your family – as you begin to build a better life with Parkinson’s disease.  Learn about symptoms and what treatment options are available at an upcoming program. 
 
PARKINSON'S, SLEEP AND ME
Tuesday, May 11th at 1:00 p.m. ET (VIRTUAL)
Getting adequate rest and sleep is an important component of overall health and quality of life. Parkinson’s disease creates many challenges to getting a good night’s sleep, both for the person with Parkinson’s and the caregiver. This program provides information on how Parkinson's disease affects sleep, and ways you can get a better night's sleep while living with PD. 
Speaker: Aleksandar Videnovic, MD, MSc
Massachusetts General Hospital, PF Center of Excellence
Early bird special: Register by April 25th to receive a welcome kit including an agenda, relative fact sheets and more. To learn more and to register, please visit Parkinson.org/SleepMA. 
 
BEYOND THE DIAGNOSIS: SURGICAL OPTIONS
Thursday, June 10th at 10:00 a.m. ET (VIRTUAL)
After several years of good symptom management, controlling Parkinson’s disease may become more challenging. In this program, participants will learn how Parkinson’s symptoms may change over time and surgical options for treating them. This program will also provide information on self-advocacy and tools for building support systems to cope with new challenges.
Speaker: Duarte G Machado, MD
David & Rhoda Chase Family Movement Disorders Center
Early bird special: Register by May 27th to receive a welcome kit including an agenda, relative fact sheets and more. To learn more and to register, please visit Parkinson.org/BTDConn.
 
WOMEN & PD: CLOSING THE GENDER GAP
Friday, June 18th at 12:00 p.m. ET (VIRTUAL)
Men and women experience Parkinson’s disease differently as it relates to their symptoms, medications, medical care and support services. This program will shed light on women-specific issues to help improve the health and well-being of women with PD. 
Speakers: Anna DePold Hohler, MD, FAAN and Okeanis E. Vaou, MD
St. Elizabeth's Medical Center
Early bird special: Register by June 6th to receive a welcome kit including an agenda, relative fact sheets and more. To learn more and to register, visit Parkinson.org/MassWomen
 
PD HEALTH @ HOME
The Parkinson's Foundation is dedicated to keeping the PD community connected by offering weekly virtual wellness programs through PD Health @ Home. Join us for an upcoming Mindfulness Monday, Wellness Wednesday or Fitness Friday. PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible. To learn more or to register, please visit Parkinson.org/PDHealth
We have compiled a great program of world leaders to bring you information and education across a range of topics at this year’s INSIGHT INTO PARKINSON’S Conference and as a friend of PD Warrior you can access it for free.
World Parkinson’s Day 11th April Program - 10 World Class speakers including:

Prof. Michael S. Okun - Professor of Neurology

Prof Charlie Teo – Neurosurgeon

Dr Norman Swan – Multi-award winning broadcaster and investigative journalist

Prof. David Finkelstein – Physiologist and neurobiologist

Dr. Benzi Kluger – Associate Professor of Neurology

Dr Kenneth Marek - President and Senior Scientist at The Institute for Neurodegenerative Disorders

Dr Ann Liebert – Adjunct Senior Lecturer in the Faculty of Medicine and Health Sciences at the University of Sydney

Dr Jon Roozenbeek – Postdoctural fellow at the Dept of Psychology University of Cambridge

Melissa McConaghy – INSIGHT Summit & PD Warrior Founder, Specialist Neurological Physiotherapist

Dr. Martin Bringmann - CSO and board director at OccamzRazor.

There are 3 plenary sessions across the day plus a live panel on Navigating Medical Misinformation that should provide you with some practical take away tips.
To view the full program visit https://www.insightintopd.com/2021-program/
Registration to INSIGHT2021 is easy and FREE, just click here https://www.insightintopd.com/
We are also pleased to announce the Journal of Parkinson’s Disease (JPD) as our media partner for INSIGHT2021.

The journal, edited by Prof. Patrik Brundin and previous INSIGHT speaker Prof. Bas Bloem, is dedicated to providing an open forum for original research in basic science, translational research and clinical medicine that will expedite our fundamental understanding and improve treatment of Parkinson’s disease.
JPD is offering all INSIGHT2021 delegates the opportunity to access news, journal content, blogs, clinical trials, awards, press releases, webinars and the latest COVID-19 articles.

You can access all this at www.journalofparkinsonsdisease.com.

 
Parkinson’s disease coverage MJFF Media Monitoring -
April 2, 2021


EPA Decides Not to Ban a Pesticide Despite Strong Links to Parkinson’s Disease [Legal Reader – April 1, 2021 – By Miguel Leyva]
 
Sure Signs You’re Getting Parkinson’s, According to Doctors [Eat This Not That – April 2, 2021 – By Leah Groth]
 
Magnetic Nanoparticles May Help Restore Brain Function [Parkinson’s News Today – April 2, 2021 – By Diana Campelo Delgado]
 
We’re on the Cusp of Parkinson’s Disease Breakthroughs. Here’s How Patients Can Help. [U.S. News – April 2, 2021 – By David Eidelberg, MD]
 
Active Lifestyle May Slow Cognitive Decline in People with Parkinson’s and Dementia Gene: Study [McKnight’s Long-Term Care News – April 2, 2021 – By Alicia Lasek]
 
Clinical Updates, Awareness Efforts During Parkinson’s Awareness Month [Pharmacy Times – April 1, 2021 – By Mary Margaret Maddox]
 
Tips for Making Your Daily Life with Parkinson’s Disease Easier [Parkinson’s News Today – April 1, 2021 – By Sherri Woodbridge]
 
He Was Diagnosed with Parkinson’s During the Pandemic. Now, He’s Going Hiking. [Charlotte Observer – April 1, 2021 – By Ebony L. Morman]
 
Do Therapies for Alzheimer’s and Parkinson’s that Clear Abnormal Brain Proteins Make the Disease Worse? [BioSpace – April 2, 2021 – By Mark Terry]
 
Gocovri More Than Doubles ‘On’ Time Without Dyskinesia, Trial Data Show [Parkinson’s News Today – April 2, 2021 – By Stever Bryson, PhD]
Volunteering for Parkinson’s Research:
What to Know and Expect

2 to 1 p.m. ETThursday, April 15, 2021
 
Our panelists will discuss different types of clinical research and how to find the best study for you. We’ll cover potential benefits and risks of participation and how volunteering for research can become a critical part of the Parkinson’s journey. Bring your questions for our experts!

The MJFF webinar series has been made possible through the leadership of members of our Parkinson’s Disease Education Consortium in conjunction with The Albert B. Glickman Parkinson’s Disease Education Program. Support from these partners allows us to furnish high-quality educational content to the Parkinson ’s community while maintaining our commitment to allocate donor dollars to high-impact research. Editorial control of all content published by The Michael J. Fox Foundation rests solely with the Foundation.
PD GENEration: Mapping the Future of Parkinson’s Disease is a national initiative that offers genetic testing for clinically relevant Parkinson's-related genes and genetic counseling at no cost for people with Parkinson’s disease. Participation can be either in-person at one of our participating Centers of Excellence sites or from home through a telemedicine appointment and at-home cheek swab collection kit. Learn more about the at-home test process in this video.
 
For questions about enrollment, email Genetics@Parkinson.org.

Registry of Deep Brain Stimulation With the VERCISE System: Vercise DBS Registry

 

Biological Sample Collection for Research and Biobanking

 

Fox Insight - Online Parkinson's Health and Genetic Study

 

Posiphen Dose-Finding Biomarker Study in Early Alzheimer's and Parkinson's Patients

 

Virtual Cycling Environments for Persons With Parkinson Disease

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https://danceforparkinsons.org/contact-us
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