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Our Next Meeting
Tuesday March 9th 7:00 PM
 
Harini Sarva MD Neuro Next Study, Light Therapy for Impaired Sleep in PD 

Harini Sarva, MD completed a combined undergraduate-medical school eight year program at CUNY Brooklyn College and SUNY Downstate Medical Center.  She completed her undergraduate degree in economics with a magna cum laude from Brooklyn College, during which team she made the Dean’s List every semester and won an award in excellence in economics.  After completing her MD, she was recruited to complete her neurology residency from SUNY Downstate, where she was also a Chief Resident during her final year of training.  She won the SUNY Downstate Alumni Association Outstanding… Read More

Scheduled for upcoming meetings 

We have a great lineup of guest speakers for our upcoming meetings. The first 30 minutes of our meetings will involve a speaker and the second half will be for support and networking.

We are going to devote one meeting a month for those from our Shaker's Anonymous members who would like to "share your story", inspire others or lead a discussion on a topic of interest. email hagerbrant@gmail.com
Tuesdays at 7:00 PM

March 16th: Parkinson's Support Group for People with PD and Care Partners
 
March 23rd:
David Levkovich, PT DPT - Owner and Director of Physical Therapy Customized Parkinson’s Exercise and Wellness Program” a panel discussion including Physical Therapists, Personal Trainers, Pilates/Yoga instructors and of course Rock Steady Boxing coaches to do a presentation followed by a Q and A. 
 

March 30th: Amy B Scher, is an energy therapist, expert in mind-body healing, and the bestselling author of How to Heal Yourself When No One Else Can. 
https://www.eomega.org/workshops/teachers/amy-b-scher
https://www.soundstrue.com/blogs/authors/amy-b-scher
 
April 6th: Care Partner Support Group Meeting with Jay Stratoudakis
 
April 13th:
Lori Quinn, EdD. PT Topic: Parkinson's Physical Activity / Coaching Program, 

April 20th: Parkinson's Support Group for People with PD and Care Partners

April 27th Dr. Soania Mathur, BSc, MD, CCFP,UnshakeableMD, MJFF Patient Council co-chair; co-founder PD Avengers soaniamathur@unshakeablemd.com
 
May 4th Care Partner Support with Jay Stratoudakis
 
May 11th TBD
 
May 18th Persons w/PD + care partners support group
 
May 25th Nancy Lombard, SW Ct Dept of Aging
 
June 1st Care Partner Support with Jay Stratoudakis
 
June 8th Nancy Lombard , SW CT Dept of Aging
 
Parkinson’s Body and Mind Program
Revised COVID Safe  Greenwich YMCA

 
Please note that given the current environment of people still receiving their vaccines, we continue to run all PD classes free of charge until  APRIL 1st .
 
The boxing track and padded mats will be in place by the middle of the month, at which time we will share some exciting visuals of this new space along with the Parkinson’s team here at the YMCA.  We can’t wait to welcome this group back into the Y!

 
All of these classes are offered both live @ YMCA (in studio AS1) and VIRTUAL.

You can call the 
Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes. 


Our goal is to deliver safe programs that re-engage and re-connect members of the Parkinson’s community as it works best for each individual.

Our current schedule is as follows:
 
Monday:           Rock Steady Boxing w/Toni @ 10:00am
Wednesday:     Rock Steady Boxing w/Toni @ 9:00am

Friday:              Yoga w/ Francesca @ 10:00am
 
Zoom in and try the class free. Call member services at (203)869-1630 for the link.

Registration
All participants must register for the class via the YMCA of Greenwich App click here for Apple or here for Android or you can call the Member Services Team at (203)869-1630 to reserve spot or if you have any questions about registration for classes.
 

Francesca Conway's Yoga for Parkinson's 
Tuesday and Thursday at 10 AM  

Join Zoom Meeting
https://us02web.zoom.us/j/3901405312?pwd=QUVTTzM3LzN5OTQ2ZlFYTld6dnRaUT09

Meeting ID: 390 140 5312
Passcode: 321096 (NEW )

Classes are free - Donations are welcome
Venmo: @Francesca-Conway-1 PayPal: nicole3@optonline.net
For more information please contact a representative at kew4005@med.cornell.edu
 
 
 
 
Join Us
Expert Q&A: Gut Health & Parkinson's
Join our Expert Q&A this Tuesday, March 9 at 12pm PST for a discussion with Dr. Bethany Tennant, ND, CNS, LMT to learn about what nutrients and foods to incorporate into your diet that can support your gut health and help improve your Parkinson’s symptoms.
 
 
Stay tuned right after the Q&A as we premiere a new recipe and cooking demo from Chef Kenny James featuring ingredients that address gut health. And on Thursday, March 11 at 12pm PST Chef Kenny is joining us live on BGF Instagram to take your questions and chat about the recipe.
 
Our Expert Q&A series is held every second Tuesday of the month in 2021. Join us to learn about topics in Parkinson's disease from the experts. Our Expert Q&A series is supported by Kyowa Kirin and Amneal.
Expert Q&A: Gut Health & Parkinson's
Date: Tuesday, March 9

Time: 12PM PST
 
Location: Zoom Webinar
 
REGISTER
THE MICHAEL J. FOX FOUNDATION | FOR PARKINSON'S RESEARCH
                                               
Brain Boost: A Conversation
on Thinking, Memory and Parkinson’s
 
   Thursday, March 18, 2021
  12 to 1 p.m. ET
 
REGISTER NOW
Our panelists will discuss thinking and memory changes that can happen in Parkinson’s disease. We’ll cover ways to manage these changes, tips to boost brain health and the latest research toward new treatments. Bring your questions for our experts.
Free Web/Teleconference

Monday, March 22, 2021
1:00 PM – 2:15 PM ET 

We’re extending time for Q&A!

Please join us for expert perspectives on promising therapies in development to address disease progression in Parkinson’s Disease (PD). This program is designed to help people with PD, family members, and care partners. Please share this invitation with anyone in your support network whom you feel will benefit from this information.

SPEAKER
David G. Standaert, MD, PhD

John N. Whitaker Professor and Chair of Neurology
The University of Alabama Birmingham School of Medicine
Birmingham, AL
Chair, APDA Scientific Advisory Board
 
Or click on the following link
http://www.aoic.net/APDAMarch222021  

Or to register by phone,
please call toll-free
(800) 223-2732

A confirmation email including program details will be sent upon registering for the program.

We are looking forward to your participation.
For many living with Parkinson’s, non-motor symptoms like fatigue interrupt everyday life more than motor symptoms. Learn more about neuropathy (nerve damage that can cause numbness or pain), fatigue and gastrointestinal issues and Parkinson’s in our next webinar in the series: 

Symptom Management: Is it PD, Medication or Aging?Exploring Non-Motor Symptoms: Neuropathy, Fatigue, GI Issues on March 9. 
Our Expert Briefing webinars are designed for people living with Parkinson’s, care partners and health professionals. Every live broadcast features a PD expert, a person from the PD community and an opportunity to ask questions. All webinars will be held on a Tuesday at 1 p.m. ET.

Exploring Non-Motor Symptoms: Neuropathy, Fatigue, GI Issues
March 9, 1 p.m. ET 
Presenters: Ellen Walter, APRN-CNP and Steven Swank, PharmD
 
Most people with Parkinson’s find non-motor symptoms to be more troublesome and disabling than motor symptoms. In this collaborative Expert Briefing, we cover the disruptive symptoms of fatigue, neuropathy and gastrointestinal issues and how they may relate to Parkinson’s, medications or aging — and cover evidence-based treatments.
 

Symptom Management: Is it PD, Medication or Aging?
Mental Well-being and Memory
April 20, 1 p.m. ET 
Presenter: Gregory Pontone, MD, MHS
How does aging affect cognition compared to Parkinson’s? In this Expert Briefing, a neuropsychiatrist discusses tips to stay mentally well, how Parkinson’s progression affects cognition, along with treatments for cognitive impairment and dementia in Parkinson’s. He will also highlight how medications can negatively affect cognition in Parkinson’s and which ones to avoid. 

 
 

— The Victory Summit® virtual event: How to Live Well with Parkinson’s. You may have also noticed a little error in the date. We are sending this note today to clear up any confusion this may have caused.

The date of this event is Friday, April 2, 2021.

Our apologies for this mistake. And just a reminder, if you can’t attend live on Friday, sign up anyway, and we’ll email you all of the recordings of the main sessions when they are ready.

Thank you for your understanding. Please let us know if you have any questions by contacting us at victorysummit@dpf.org.
Dear friends, 

The WPC has strong history of bringing the community together, and part of that mandate is to ensure that everyone in the community understands what other stakeholders are doing to advance progress on Parkinson’s. WPC’s new Twitter Take over series is designed to do just that, help us connect our community, ensure we understand the important roles we each play in moving the dial on Parkinson’s research and care. Next week on Monday, March 8, Professor Bas Bloem from the Netherlands will take over our Twitter pages to showcase a day in the life of a movement disorder doctor. For those of you who are not movement disorder doctors, do you really know what their days look like? Connect to us on TWITTER and take a peek. 

Last month we opened the triennial WPC Song Competition! Deadline for submission of a song is September 30, 2021. The two winning songs will be performed by the WPC choir at the opening ceremony in Barcelona, on Tuesday, June 7, 2022, led by WPC Choir Director, Judi Spencer. Learn more. 

See below for details and registration links to our virtual programs for March. 

WPC Research Spotlight - COVID and Parkinson’s 
Tuesday, March 23, 2021 
4 – 5 PM ET/ 8 – 9 PM GMT  
(4 hour time difference between US and UK due to Daylight savings) 
ABOUT: Professor Roger Barker, WPC Vice President, will interview Professors David Finkelstein and Kevin J. Barham, and Dr. Leah Beauchamp who will discuss their research on COVID-19 and implications for Parkinson's which they wrote about in their recent blog post  The Covid Pandemic Doesn't Smell Right and published about in the Journal of Parkinson’s Disease in 2020. Hear directly from the research team and get your questions answered. 
REGISTER today for this Research Spotlight
_____________________________________

WPC Virtual Congress – Save the date 
Monday, May 17 – Friday, May 21, 2021 
ABOUT: This exciting virtual Congress is a first for the WPC. Registration opens April 1, 2021, but the program is ready for review today and cements the WPC’s commitment of bringing the community together to advance our knowledge of Parkinson’s.  
Made possible with support from Premier Sponsors: Amneal Pharmaceuticals and Medtronic and many other supporters.
View Program  
_____________________________________

March Parkinson Sing-A-Long  
Wednesday, March 10, 2021 
11 AM – 12 PM ET 
Join WPC Choir Director, Judi Spencer, for a lively session of song. 
REGISTER today 
_____________________________________

Before signing off I want to bring a little smile to your day with a ‘mid-winter’ moment of creativity thanks to William Tell’s overture mixed with some virtual "dance joy". This creative burst of energy is  brought to you by Pamela Quinn, dance choreographer from the WPC 2019 Opening Ceremony, and her virtual dancers. WATCH this video to put a smile on your face!

Looking forward to seeing you in 2022 in Barcelona. 

 

COMMUNITY MINDFULNESS PROJECT - MINDFULNESS CARE FOR THE RESILIENT CAREGIVER WITH ERIKA LONG

When we connect with the present moment, we let the nervous system breathe a big sigh of relief. Paying attention to the sensations caused by breathing can be a great anchor in the present moment. The region of the brain that allows us to feel connected to the present moment is also a region that helps us feel integrated with our environment, less self-focused I/me/my, less ruminating or prone to looping thought.

This is also a great practice for letting go of our tendency to control things that we don’t need to control.

This video includes a short guided meditation and tips for incorporating present-moment awareness into our engaged life.

WPC BLOG HIGHLIGHT
 
INFUSION THERAPIES AND OTHER NOVEL DRUG DELIVERY FOR PARKINSON'S DISEASE: NEW AVENUES FOR OLD DRUGS 
by Werner Poewe, MD

After more than 50 years since its introduction as a treatment for Parkinson’s disease levodopa still stands out as the most effective of all available drugs when it comes to improving motor symptoms, restoring activities of daily living and maintaining quality of life of people affected by the disease. Although levodopa remains unchallenged as the ‘gold standard’ of symptomatic efficacy, in many people with Parkinson’s its long-term use is associated with the development of undesirable and often distressing changes in the effect of the drug. These are termed motor complications and include two types of problems: fluctuations in motor response and drug-induced involuntary movements called dyskinesias. 

READ MORE
 
Michael J. Fox Foundation coverage    
Youth Film Festival Goes Virtual So Future Moviemakers Can Still be Seen [Akron Beacon Journal – March 4, 2021 – By George M. Thomas] 
 
Parkinson’s disease coverage      
Brain Cell Transplant Reverses Monkey’s Symptoms [Parkinson’s News Today – March 5, 2021 – By Steve Bryson, PhD] 

Sesame Seed Extract Shows Promise for Parkinson’s [Medical News Today – March 5, 2021 – By James Kingsland] 

Smoking Cessation Drug Shows Potential to Treat Parkinson’s Disease in Females [News Medical Life Sciences – March 4, 2021 – By Emily Henderson, B.Sc.]

Study Reveals Close Link Between Parkinson’s Disease and Certain Immune Cells in the Blood [News Medical Life Science – March 4, 2021 – By Emily Henderson, B.Sc.]

CSF Biomarker Flags Parkinson’s Pathology Years Before Symptoms Appear [MedPage Today – March 4, 2021 – By Judy George] 

Why Both Parkinson’s Patients and Caregivers May Grow Impatient [Parkinson’s News Today – March 5, 2021 – By Sherri Woodbridge] 

 

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https://www.parkinson.org/node/4899

Dance For PD
https://danceforparkinsons.org/contact-us
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