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"Never let the things you cannot do prevent you from doing the things you can do"  Coach John Wooden
 
Our Next Meeting 
Tuesday August 24th. at 7:00 PM
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Opportunity to Join Remote Research Study Led by UC San Francisco
 
Dr. Caroline Tanner, MD PhD is recruiting for a new clinical trial led by a team of Parkinson’s experts at UCSF in partnership with researchers from across the country. The goal of the study is to help people with Parkinson’s disease or parkinsonism maintain their independence by reducing the risk of hip fractures.
 
People with Parkinson’s disease or parkinsonism have a much higher risk of hip and other fractures. TOPAZ (Trial of Parkinson’s and Zoledronic Acid) will test if zoledronate, an FDA-approved medication for osteoporosis (thinning of the bone), can prevent fractures in people with Parkinson’s disease, whether or not they have osteoporosis.
 
You can safely participate in TOPAZ from the comfort of your home, as it is a completely remote study. 
 
To be eligible, individuals must have Parkinson’s disease or another type of parkinsonism and be at least 60 years of age.
 
If you have any questions, please visit our study website TOPAZstudy.org or email TOPAZ@ucsf.eduor call us directly at (415) 317-5748
There will not be a meeting on Tuesday 8/31.
Last Friday we had a Journal Club meeting with Leon Meytin MD. Hartford Healthcare is actively recruiting interested people with PD.
 
Levodopa/Carbidopa (ND0612) NeurodermInfusion Pump

Hartford Healthcare is actively recruiting for phase 3 trial

NeuroDerm’s flagship product ND0612 is currently in late stage development for Parkinson’s disease patients experiencing motor fluctuations. 
 
https://hartfordhealthcare.org/services/movement-disorders-center/research

https://neuroderm.com/our-solution/about/
Marion Fioretti is a Shaker's Anonymous member and also very active with MJFF Team Fox events. She has agreed to help us put together a Shaker's Anonymous Team for the MJFF Virtual Run/Walk Event for Parkinson's Research. Marion will be speaking about the details and how to sign up for the upcoming virtual 5K/10K/Half Marathon scheduled for Saturday October 2nd. 

We are going to put together a virtual training program to help us reach our personal goals to do our very best at the event besides helping to raise money for Parkinson's research. 
https://foxtrot.michaeljfox.org


Marion Fioretti
Keep Moving For A Cure
https://fundraise.michaeljfox.org/tf-2021/Marion

Did you know that August is National Make-a-Will Month?

This is a great time to take stock of all the things in our life that are meaningful - the people you love and the causes you care about the most.

In that spirit, the Davis Phinney Foundation has a free, online resource to help you through the process of creating your plans in 20 minutes or less.

Start My Free Will

PARKINSON’S NEWLY DIAGNOSED RESOURCES

“You have Parkinson’s.” An estimated 60,000 people in the US hear these three words each year, setting them on a journey that, for so many, is filled with more questions than answers, especially in the beginning. But after 16 years of working to help people live well with Parkinson’s, we know these three words don’t have to mean giving up on the kind of life you imagined for yourself or your family. We also know that the longer it takes for someone to find the resources they need to live well, the longer their Parkinson’s will present challenges that affect their quality of life in negative ways. To help you get what you need, here is a collection of our most popular and helpful Parkinson’s resources for people who have been newly diagnosed. Read more...

EPA FINDS ITS NERVE, BANS CHLORPYRIFOS
Exposure to chlorpyrifos increases the onset of Parkinson's disease by 250% and farmers have been using it on food crops since 1965. 
Read more...
Printable Parkinson's ID Card
Click Here to Print
CLASSES BEGIN Monday, August 9th, 2021
Parkinson's Body and Mind Program
 
PD Boxing & Conditioning  mini-session.
Starting Monday, August 9th 
Every Monday and Thursday 
 12:30-1:30 in the Zone 
Mon: Aug 9, 16, 23, 30
Thu: Aug 12, 19, 26 and Sep 2

Cost
Members: FREE  |  Non-Members: $60 
Daily Drop-In (Based on availability): $10 Seniors  | $20 Adult
 
Click Here for information about boxing gloves.

The number of spots per boxing class has been increased from 10 to 15. Starting in September we are planning to add an option to participate in the classes via zoom.

Call  203-226-8981
 
Information regarding the fall schedule:
https://westporty.org/programs-services/health-wellness/parkinsons/ 


Also, if you choose to participate in the Parkinson's Body and Mind Program classes we strongly encourage you to wear a mask. 
https://www.cdc.gov/coronavirus/2019-ncov/variants/delta-variant.html
Register
The YMCA of Greenwich is a Rock Steady Boxing Affiliate and has created a new boxing studio with padded flooring for safety.  Pat Francois, Interim CEO said, “As a Rock Steady Affiliate and with our new boxing studio, the YMCA is in a great position to support members of the PD community”.
 
There is a temporary hold for
Thursday boxing with Heather.

Parkinson’s Program pass that allows for unlimited classes in house and virtual Greenwich YMCA (activecommunities.com)
 
Class Schedule
Click on images to connect to the websites
Copyright © 2021 Shaker's Anonymous, All rights reserved.


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