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We are pleased to announce the annual fall CPCC conference is back, in-person, on Friday, November 11, 2022. It will be held at the Sparrow Health Pavilion in East Lansing. Sessions and speakers are being finalized and the line up of subject matter experts and content looks amazing. The title of this year's conference is one you will not want to miss - Walking the Tightrope: Today's Ethical Challenges in Pediatric Palliative Care.
 
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Conference Info
Conference Schedule
Support Pediatric Palliative Care Families - Mental Wellness for Parents

$3700 allows us to help up to 15 parents! The more we raise, the more families we can support.

Many parents’ first response might be, “I don’t have time to take for myself!” Or, “my needs are not as important as my child’s!” As they say on airplanes, people must put on their own mask before they help others. The same is true for mental wellness. We think that not only do you deserve to feel happy and healthy, you will be better able to care for others when they are thriving themselves.$3700 allows us to help up to 15 parents! The more we raise, the more families we can support. Read More...
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Mood Lifters Art Auction a Success 
Register for October 19 Mood Lifters Session
 
Thank you to all who purchased artwork through the online Mood Lifters auction. The program raised enough money to put on a full Mood Lifters session for 15 parents at a greatly reduced price.
 
The next 15-week group session will start on Wednesday October 19 and will be provided at a cost of $25 per family/caregiver, instead of the regular $249 registration fee. For participants unable to pay this, a limited number of scholarships are available. To register please click this link. Health care providers, be sure to let your patient's families know about this.
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Bereavement Parent Mentor Training 
There is very little support for parents/caregivers who have had children with special health care needs or who have experienced the loss of their child.  The Family Center for Children and Youth with Special Health Care Needs recognizes this lack of support and in response, has created this Parent Mentoring Training.

This Parent Mentoring Training is for parents in Michigan who have had a child with a special health care need, experienced the loss of their child at least 13 months ago and would like to help other parents that are looking for support in their journey with grief. The training requirements for parent/caregivers are:

  • Their child had a special health care need
  • The loss occurred at least 13 months ago
  • The parent desires to support another parent, possibly with the same diagnosis, who has also experienced the loss of their child.
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Sparrow Hospital to offer ELNEC Course

End-of-Life Nursing Education Consortium Pediatric Palliative Care Training Course

Thursday and Friday, November 3 & 4, 2022 
9 a.m. - 5 p.m. EST.

The End-of-Life Nursing Education Consortium (ELNEC) Project is a national and international end-of-life/palliative care educational program administered by City of Hope (COH) designed to enhance palliative care in nursing. Materials are copyrighted by City of Hope and the American Association of Colleges of Nursing (AACN) and are used with permission.

The course will be held on site at Sparrow or virtually.
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More Information
How often do you shop on Amazon? When you sign up for Amazon Smile, every purchase you make will result in Amazon donating 0.5% of the price to the Children's Palliative Care Coalition of Michigan. What an easy way to support CPCC! Click here for instructions on how to participate.
Interprofessional Spiritual Care in Pediatric Palliative Care
September 22, 2022, 3:00 pm
Learn More and Register

The presentation will discuss the importance of addressing spiritual health, particularly spiritual distress in the care of pediatric patients with serious illness, and their families, guidelines which support addressing spiritual issues with patients, and strategies for integrating spiritual care in clinical practice.

Plan ahead and download the entire 2022 schedule!
Families and caregivers may attend for free. Send an email to admin@childpalliative.org.

PPCC (Pediatric Palliative Care Coalition), GIPPCC (Greater Illinois Pediatric Palliative Care Coalition), CHPCC (Children’s Hospice & Palliative Care Coalition of California), and the CSU Shiley Haynes Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence. 

CPCC of MI is here to help medical providers, families, and caregivers identify resources that address their questions, challenges and struggles. We invite you to explore our Resource page, which is continually being updated and includes:
  • Resources for parents and caregivers of chronically children
  • Useful links and organizations
  • Grief support
  • Current and Past Newsletters
  • Articles of interest "In the News"

Firefly Chat - What Can Bereaved Siblings Teach Us
Tuesday, September 13, 2022 - 3:00 pm

The experience of grieving is different for all of us, but we can learn from those that are on that journey. Palliative care and end of life for children focuses on the whole family including siblings.

During this Firefly Chat session, they will talk with a bereaved sibling to learn how the death of his brother affected him and his family, They will discuss how language can be both helpful and harmful. Throughout the discussion, they will highlight how‍ the experience impacted his life and the relationship with his mom and surviving siblings. 

Click HERE for more information and to register. As always, the Firefly Chat is free of charge.‍
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CPCC works to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child. 

 Your continued support of our mission is extremely important. Please consider becoming a Member or making a Donation - thank you! 
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