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CPCC of MI held it's 2022 virtual Annual Meeting on June 2. President Dr. Ken Pituch recapped the coalition activities and initiatives from 2020 and 2021. Following the member update, participants met the current board members and officers and voted for the recommended slate of board members and officers - view list here.
To read the minutes, click here. You may also view the Zoom meeting recording - use passcode ^%J50+U5.
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How often do you shop on Amazon? When you sign up for Amazon Smile, every purchase you make will result in Amazon donating 0.5% of the price to the Children's Palliative Care Coalition of Michigan. What an easy way to support CPCC! Click here for instructions on how to participate.
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Understanding the Lived Experience of Siblings of Children with Significant Neurological Impairment
June 23, 3:00 p.m. EST
Learn More and Register
The results of a phenomenological qualitative study using photo voice to interview sibling/parent dyads to better understand the lived experience of being a sibling to a child with SNI will be discussed.
Presenter; Danielle Jonas | New York University Silver School of Social Work
Plan ahead and download the entire 2022 schedule!
Families and caregivers may attend for free. Send an email to admin@childpalliative.org.
PPCC (Pediatric Palliative Care Coalition), GIPPCC (Greater Illinois Pediatric Palliative Care Coalition), CHPCC (Children’s Hospice & Palliative Care Coalition of California), and the CSU Shiley Haynes Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence.
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Don't You Forget About Me: Caring for Siblings
PPC Webinar
This webinar was originally presented in February 2019 by Yelena Zatulovsky and Dana Richmond. It highlights the experiences of siblings, as told by the siblings themselves, and examines the evidence-based interventions, strategies, and obstacles toward an effective framework of support that empowers and honors siblings.
This webinar is available free of charge. Click here to view the webinar
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 NHPCO Pediatric E-Journal, May 2022
Bereavement
A few highlights from this issue:
- Bereavement, A Parent’s Perspective
- Guilt and Grief: A Burden Worth Exploring
- An Introductory Review of the Utilization of Creative Art Therapies in Bereavement with Children
- Grief and Bereavement Support for Underserved Communities around the World
Click here for more information.
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 PPPC Sibling Support Toolkit
The Pennsylvania Pediatric Palliative Care Coalition and Courageous Parents Network have partnered to bring as many resources together as possible to help parents, caregivers, and medical professionals give that special attention to siblings who live and share their lives with a brother or sister with medical complexities. It takes a team to work with a child with medical complexities, and that same sense of teamwork should be extended to support siblings as they navigate the ups, downs, setbacks, and joys that make up their day to day lives.
Click here to view the entire Sibling Support Toolkit.
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CPCC works to improve access to and quality of palliative care for children suffering life-limiting conditions. We aim to make it easier for families to find the guidance and support they need when navigating the complexities of caring for their child.
Your continued support of our mission is extremely important. Please consider becoming a Member or making a Donation - thank you!
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