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Newsletter #1                          


December 2019
A registry-based randomised controlled trial (RRCT) of symptom monitoring,

using patient-reported outcomes, and care coordination to improve quality of

life for people with upper gastrointestinal cancer.
Thank You

Firstly, the PROpatient team would like to extend a big thank you to everyone who has contributed and provided support to the project in this initial development phase, your contributions have been greatly appreciated. The PROpatient team wishes you all a happy and safe holiday and we look forward to continuing to work with you all in 2020. 
Trial Overview 
 
AIM:
To determine if symptom monitoring, using patient-reported outcomes (PROs), integrated into clinical practice in real-time, via care coordination, improves health outcomes for patients with pancreatic and oesophagogastric cancer in high-volume hospitals in Victoria.

PRIMARY OBJECTIVE:
To assess whether the PROpatient intervention is effective in improving health-related quality of life (HRQoL) in patients diagnosed with pancreatic or oesophagogastric cancer

SECONDARY OBJECTIVES:
To assess whether, compared to usual practice, the PROpatient intervention positively impacts outcomes of patients diagnosed with UGI cancer. Specifically, we will assess whether patients assigned to the intervention arm demonstrate (at 3, 6 and 12 months); 

1) Increased access to supportive care services and reduced emergency department visits 
2) Increased patient access to information
3) Timely referral to palliative care services;
4) Increased median survival 
Meet The Team
Participating Sites 
Click Here For Individual Site Principal and Associate Investigators
Contributorship
Chief Investigators:  
Prof John Zalcberg, Head, Cancer Research Program (Monash University)
Dr Liane Ioannou, Research Fellow, Cancer Research Program (Monash University)
Prof Sue Evans, Director -Victorian Cancer Registry
Prof Madeleine King, Director, Quality of Life Office (The University of Sydney)
Dr Dan Croagh, Hepatobiliary Surgeon (Monash Health)
Dr Charles Pilgrim, Hepatobiliary Surgeon (Alfred Health)
Prof Wendy Brown, Bariatric and Upper Gastrointestinal Surgeon (Alfred Health) 
Prof Kate White, Professor of Nursing (The University of Sydney) 
Prof Jennifer Philip, Palliative Care Clinician (Melbourne University)
Prof Arul Earnest, Senior Biostatistician - Registry Sciences Unit (Monash University)


Associate Investigators:  
Dr Darshini Ayton, Monash Partners Research Fellow (Monash University)
Dr Claudia Rutherford, Health Psychology Researcher (The University of Sydney)

Prof Penny Schofield, Head, Behavioural Science in Cancer (Peter MacCallum Cancer Centre)
Mr David Attwood, Consumer Advocate
Mr Peter Bairstow, Consumer Advocate 
Mr John Liman, IT Professional (Monash University)
Dr Ri Scarborough, Research Affiliate (Monash University) 
Prof Danny Liew, Health Economist (Monash University) 
Prof Jon Emery, Primary Care (Melbourne University)
Ms Theresa Dodson, Nurse Consultant (Monash Health)
Ms Kate Furness, Clinical Dietitian (Monash Health)
Ms Seleena Sherwell, Program Manager (Integrated Cancer Services)


A special thank you to Prof Afaf Girgis and A/Prof Rachel Neale for your continued contribution to the project thus far. 
Click Here For Steering Committee, Advisory Working Group & Operational Working Group Members
Previous & Upcoming Meetings 

UPCOMING MEETINGS AND CONFERENCES: 


Next upcoming meetings:

Steering Committee: TBC - June 2020 

Advisory Working Group: 1:30pm 12th February 2020




Upcoming Conferences:

-University of Sydney 'PROMS Down Under' Conference - Workshop Presentation
-3rd Victorian Cancer Survivorship Conference - Abstract Submitted
-23rd Cancer Nurses Society of Australia  Annual Congress - Submit Abstract in January 
-ISOQOL 27th Annual Conference - Submit Symposium Abstract 


 
What we've been up to... 
Resource Development 

Disease-Specific Patient Reported Outcome Measure


We are currently developing the Patient Reported Outcome Measure (PROMs) that will be featured in our IT platform- through this patients will be able to report their symptoms via their computer, mobile or tablet device if they are in the intervention arm of the trial. This development has involved multiple processes: 

 
-Clinician Focus Groups

-Consumer Focus Groups

-Consumer questionnaire to identify top symptoms and concerns 
Site Visits & Site Mapping - We want to meet you!
PROpatient Nurse Consultant Lisa Brady (right) pictured with Alfred Innovation and Improvement Manager, Cancer Program Colleen Berryman (left) 
As part of our project planning we have commenced visiting the health services participating in the trial. You may have already seen members of our team, otherwise we are coming to meet you soon! 

These visits are in order to introduce the study to your team and help us begin to plan referral pathways that are available and established at your site. If you have anyone in mind you think it would be important for us to meet please let our Cancer Nurse Consultant Lisa Brady know - lisa.brady@monash.edu
Sub-Study

Data Linkage Project 

 
Data linkage application currently under review by DHHS 

This project will include a mixed-methods study exploring patients/caregivers, clinician’s and allied health professionals experiences with supportive care service utilisation and will commence in Feb/Mar 2020.
Services that will be linked via the data linkage project 
Academic Updates
Click Here For Research Output
2019 Conferences Attended 

• Victorian Integrated Cancer Services Conference (VICS) – Poster Presentation
• AGITG – Poster Presentation
• ISOQOL 26th Annual Conference – Poster Presentation
• Ballarat Health Services Research Symposium – Poster Presentation
Left to Right: PROpatient Cancer Nurse Consultant; Lisa Brady, PROpatient Research Assistant; Carla Edgley, PROpatient Ballarat Health Principal Investigator; Mr Kon Shimokawa 
IT System - Personified Care 

The trial will be using the IT system "Personified Care" to deliver our patient reported outcome measures (PROMs) (patients in the intervention arm) and our 3 monthly quality of life questionnaires (patients in both control and intervention arms). 

"Personified Care" is a secure system that will protect patient privacy as well as providing a secure platform to carry out the intervention and quality of life questionnaires. 
Twitter - Follow Us! 

See what we are up to by following our twitter page and tweets! 

Click here to view our page and trial activity
Project Details 
Project Team:  
Prof John Zalcberg 
Dr Liane Ioannou
Lisa Brady
Tina Griffiths
Carla Edgley 
Tennille Lewin
Nadia Khan

Contact us: 

P: 1800 975 255
E: propatient@monash.edu
W: https://ugicr.org.au/propatient/ 


 
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The PROpatient Trial would like to thank the Victorian Cancer Agency, the Upper Gastrointestinal Cancer Registry, the School of Public Health and Preventive Medicine units including the Registry Sciences Unit, the Victorian Cancer Registry and participating health services, who have provided support to the trial.
Copyright © 2019 PROpatient - a registry based randomised control trial associated with the Upper Gastrointestinal Cancer Registry, All rights reserved.
You are receiving this email because of your associations with the PROpatient trial, Monash University
 
Our mailing address is:
PROpatient Trial - Upper Gastrointestinal Cancer Registry 
School of Public Health and Preventive Medicine 
Monash University
Level 2, 553 St Kilda Road
Melbourne, Victoria 3004
Australia 

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PROpatient · Level 2, 553 St Kilda Road · Melbourne, VIC 3004 · Australia

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