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Now recruiting at:
  • Alfred Health
  • Austin Health
  • Ballarat Health Services (including BAROC)
  • Cabrini
  • Eastern Health
  • Monash Health (including JMPH)
  • Peter MacCallum Cancer Centre
  • St Vincent's Hospital Melbourne
MEETING UPDATE
Unfortunately, our meeting cancellations have not been updating for those using Microsoft Outlook. Our sincerest apologies to anyone who has been affected by this.

Moving forward, we will send out an email update to accompany any cancelled or rescheduled meetings.
 Please see our Committee Meeting Dates below. 
SITE GOVERNANCE
The PROpatient team has now commenced recruitment at 8 sites, and is pending governance approval for 2 sites. We are also excited to welcome Epworth HealthCare & Western Health to PROpatient.

 See more exciting updates below! 
PROJECT UPDATES

Nurse Consultants: Lisa and Tina
READY? SET? GO!

Following recruitment commencement, Lisa and Tina are now “off and running” to quickly respond to participant’s reporting their symptoms/concerns.

Contact with eligible patients has been met with keen interest and willingness to help us better understand the support needs and care coordination aspects of a complex and challenging cancer diagnosis such as UGI Cancer.
Participants in the intervention arm are asked to report any disease-specific symptoms/issues of concern via PersonifyCare. We then respond to these Patient Reported Outcomes (PROs) by providing targeted self-help resources and/or further evaluation of their symptoms/concerns via a phone call and clinical assessment. Communication between the PROpatient research team and the relevant clinical team is facilitated using the Clinician Patient Report, which provides a brief summary of the participant’s clinical issues and subsequent assessment and agreed action plan.
The PROpatient Nurses are grateful for patients' understanding and willingness to contribute to our research, especially at a time that is often difficult and burdensome for the patient and their family.

In addition to recruitment, the PROpatient Nurses have been busy writing and submitting conference abstracts to share their work with the wider Cancer Nursing and health care professional community.
 
 Read our Conferences and Publications section for more information! 

PhD Students: Nadia and Tennille 
Nadia Khan
Nadia’s PhD project aims to explore supportive care utilisation in pancreatic and oesophagogastric cancers. This will be achieved through exploration of patient and caregiver's supportive care experiences by way of qualitative interviews; a systematic review of the determinants of health service utilisation; and mapping the patterns of supportive care utilisation in Victoria, Australia by exploring linked data. 

Qualitative interviews with patients and caregivers of patients diagnosed with pancreatic and oesophagogastric cancers has been completed, with clear gaps and opportunities for improvement identified. A systematic review exploring patient and service-level characteristics associated with health service utilisation in pancreatic cancer has been completed, with a manuscript currently in preparation. Phase 1 of the linked data for the Upper Gastrointestinal Cancer Data Linkage project will be available for analysis by Q3, 2021. Additionally, palliative care utilisation will be explored through analysis of the Palliative Care Outcomes Collaboration dataset.

Nadia is currently undertaking an internship at Cancer Australia, reviewing clinical trials activity in pancreatic cancer, to inform the development of the National Pancreatic Cancer Roadmap. This work will form part of her PhD thesis. 
. . .
Tennille Lewin
Tennille is currently finalising the UGI cancer specific Patient Reported Outcomes (PROs) tool, once this has been developed patients recruited into the intervention arm of the PROpatient trial will be able to choose to use the long item PROs tool (63 items) or the UGI cancer specific PROs tool to report their symptoms in real time.

The 'Understanding health professionals' perceptions of a centralised model of cancer care coordination in facilitating supportive care to people diagnosed with Upper gastro-intestinal cancer' project has now been approved by ethics and recruitment of health professionals from the PROpatient trial sites has commenced.

The 'Understanding patients with Upper gastro-intestinal cancers perceptions of receiving supportive care via a centralised model of cancer care coordination' study protocol is currently in development and will be submitted to ethics at the end of April.
CONFERENCES & PUBLICATIONS
Cancer Nurses Society Australia (CNSA) - June 2021
  • [ABSTRACT] The PROpatient Cancer Nurse Consultant for people diagnosed with Upper Gastrointestinal (UGI) cancer: An innovative approach to centralised specialist cancer nurses in the Australian setting 
    - Presented by Lisa Brady and Tina Griffiths 
  • [ORAL PRESENTATION] Real-Time Symptom Monitoring Tool for Upper-Gastrointestinal Cancer Patients
    - Presented by Tennille Lewin 

MASCC/ISOO Annual Meeting - June 2021
  • [ABSTRACT] DEVELOPMENT OF EVIDENCE-BASED CLINICAL PATHWAYS FOR SYMPTOM MANAGEMENT IN PATIENTS WITH UPPER GASTROINTESTINAL CANCER: A MULTIDISCIPLINARY APPROACH
    - Presented by Lisa Brady and Tina Griffiths
  • [ORAL PRESENTATION] A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer
    - Presented by Nadia Khan
  • [ABSTRACT] TBC
    - Presented by Tennille Lewin 

PROMS Down Under -  July 2021
  • [ORAL PRESENTATION] Developing a Patient Reported Outcomes Measure tool for Upper Gastro-intestinal cancer patients
    -     Presented by Tennille Lewin

International Society for Quality of Life Research (ISOQOL) - TBC 2021
  • [ORAL PRESENTATION] A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer
    - Presented by Nadia Khan
  • [ABSTRACT] TBC
    - Presented by Tennille Lewin 
COMMITTEE MEETING DATES
PROJECT CONTACT DETAILS
Project Team:  
Coordinating PI - Prof. John Zalcberg 
Co-Coordinating PI - Dr Liane Ioannou
Project Manager - TJ Muhlen-Schulte
Nurse Consultant - Lisa Brady
Nurse Consultant - Tina Griffiths
Research Assistant - Bianka D'souza
PhD Candidate - Nadia Khan
PhD Candidate - Tennille Lewin
How to reach us: 
P: 1800 975 255
E:  propatient@monash.edu
W: http://www.propatientproject.org/
Click HERE to see the PROpatient Committees
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Click HERE to stay up to date with our PROpatient Newsletters
Click HERE to stay up to date with the Upper GI Registry Newsletters
You can find previous PROpatient newsletters here.
You can find previous Upper GI Cancer Registry newsletters here (scroll to bottom of webpage).
The PROpatient Trial would like to thank the Victorian Cancer Agency, the Upper Gastrointestinal Cancer Registry, the School of Public Health and Preventive Medicine units including the Registry Sciences Unit, the Victorian Cancer Registry and participating health services, who have provided support to the trial.
Copyright © 2019 PROpatient - a registry based randomised control trial associated with the Upper Gastrointestinal Cancer Registry, All rights reserved.

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Our mailing address is:
PROpatient Trial - Upper Gastrointestinal Cancer Registry 
School of Public Health and Preventive Medicine 
Monash University
Level 2, 553 St Kilda Road
Melbourne, Victoria 3004
Australia 






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