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PROpatient is now approved at:
  • Alfred Health
  • Austin Health
  • Ballarat Health Services
  • Cabrini
  • Eastern Health
  • Epworth HealthCare *NEW*
  • Monash Health
  • Peninsula Health *NEW*
  • Peter MacCallum Cancer Centre
  • Royal Melbourne Hospital *NEW*
  • St Vincent's Hospital Melbourne
NEW SHORT-ITEM SYMPTOM MONITORING TOOL AVAILABLE TO PATIENTS
Recently, Tennille Lewin (PhD Student) completed the development of the short-item symptom reporting tool
and will undertake a study to establish reliability and validation of the tool using data from the PROpatient trial. 

The short item tool is now available to all patients in the intervention arm of the PROpatient trial.
 See more exciting project and PhD student updates below! 
PARTICIPATING SITES
The PROpatient trial is actively recruiting at six sites. We are finalising remote or on-site access at five sites. One site is pending governance approval. 

 See more exciting updates below! 
PROJECT UPDATES

Nurse Consultants: Lisa and Tina
The study team recently received some feedback from patients participating in the PROpatient trial! Let's see what they have to say:
Patient 1

"[The PROpatient nurse] has a way of reading between the lines, even through the survey, and I get a call just when I need her. Talking to her helps settle my mind and eases the anxiety I often don't know is there. Even though she must talk to a lot of people, she is always patient and I always feel better and 'normal' when we are finished... and I know I can call anytime! Awesome!"
. . .
Patient 2

"The PROpatient service is of great value to a person like me recovering from cancer surgery. After my monthly oncology appointment, I receive a follow up call from [the PROpatient nurse]. If I have any concerns on treatment or any other cancer-related issues there is always a helpful ear..."
Thank you to the study participants for your time and involvement in the PROpatient trial. The study participants significantly contribute to this study through their participation, and we appreciate their support in continually improving the care provided to patients with similar experiences.

Additionally, thank you to the hard-working specialist nurses on the PROpatient team, Lisa Brady and Tina Griffiths - your time and expertise is greatly appreciated!

PhD Students: Nadia and Tennille 
Nadia Khan
As part of her PhD project exploring supportive care utilisation in UGI cancers, Nadia is currently analysing patterns of palliative care utilisation in pancreatic cancer using data from the Palliative Care Outcomes Collaboration. Linked data from the Centre for Victorian Data Linkage has also been obtained and preliminary analysis is expected to commence within the next month. 

Nadia has recently completed an internship with Cancer Australia and has undertaken a review of clinical trials activity in pancreatic cancer to inform the development of the National Pancreatic Cancer Roadmap. 
. . .
Tennille Lewin
Tennille is currently undertaking a research study to determine the feasibility and acceptability of the PROpatient centralised model of care coordination from the perspective of both health professionals (HPs) and patients. This is a mixed-methods study. Interviews with HPs and patients will be used to develop short surveys that had be administered to HPs' patients (who have had the intervention) at various time points throughout the trial. To date, interviews have been conducted with 15 HPs that provide care to patients with UGI cancer from PROpatient trial sites, including representation from a range of specialties (surgery, oncology, nursing, allied health, palliative care).

Recently, Tennille completed the development of the short-item symptom reporting tool and will undertake a study to establish reliability and validation of the tool using data from the PROpatient trial.
CONFERENCES & PUBLICATIONS
World Congress of Epidemiology 2020 - SEPT 2021
  • [VIDEO PRESENTATION] Challenges in Data Linkage – Experiences from An Upper Gastrointestinal Cancer Data Linkage Study
    - Presented by Nadia Khan
EPWORTH RESEARCH MONTH 2021- OCT 2021
  • [ORAL PRESENTATION] PROpatient study protocol -  A multicentre, registry-based randomised controlled trial of symptom monitoring and centralised care coordination to improve health-related quality of life for patients with pancreatic and oesophagogastric cancer
    - Presented by Tennille Lewin
  • [POSTER PRESENTATION] Development of clinical pathways for symptom management in patients with upper gastrointestinal cancer: A multidisclipinary approach
    - Presented by Tina Griffiths

ALFRED HEALTH WEEK 2021 - OCT 2021 
  • [VIDEO PRESENTATION] A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer
    - Presented by Nadia Khan

Cancer Nurses Society Australia (CNSA) - OCT 2021
  • [VIDEO PRESENTATION] The PROpatient Cancer Nurse Consultant for people diagnosed with Upper Gastrointestinal (UGI) cancer: An innovative approach to centralised specialist cancer nurses in the Australian setting 
    - Presented by Lisa Brady and Tina Griffiths 
  • [VIDEO PRESENTATION] Real-Time Symptom Monitoring Tool for Upper-Gastrointestinal Cancer Patients
    - Presented by Tennille Lewin 

International Society for Quality of Life Research (ISOQOL) - OCT 2021
  • [ORAL PRESENTATION] A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer
    - Presented by Nadia Khan
  • [POSTER PRESENTATION] TBC
    - Presented by Tennille Lewin 

Clinical Oncology Society of Australia (COSA) - NOV 2021
  • [POSTER PRESENTATION] TBC
    - Presented by Tennille Lewin 
COMMITTEE MEETING DATES
PROJECT CONTACT DETAILS
Project Team:  
Coordinating PI - Prof. John Zalcberg 
Co-Coordinating PI - Dr Liane Ioannou
Project Manager - TJ Muhlen-Schulte
Nurse Consultant - Lisa Brady
Nurse Consultant - Tina Griffiths
Research Assistant - Bianka D'souza
PhD Candidate - Nadia Khan
PhD Candidate - Tennille Lewin
How to reach us: 
P: 1800 975 255
E:  propatient@monash.edu
W: http://www.propatientproject.org/
Click HERE to see the PROpatient Committees
Help share the news about PROpatient!

We would love to share the PROpatient Trial with anyone who is interested so if you think there is someone important missing out on our newsletter, please forward it on or share this in a tweet (see below)! 
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Click HERE to stay up to date with our PROpatient Newsletters
Click HERE to stay up to date with the Upper GI Registry Newsletters
You can find previous PROpatient newsletters here.
You can find previous Upper GI Cancer Registry newsletters here (scroll to bottom of webpage).
The PROpatient Trial would like to thank the Victorian Cancer Agency, the Upper Gastrointestinal Cancer Registry, the School of Public Health and Preventive Medicine units including the Registry Sciences Unit, the Victorian Cancer Registry and participating health services, who have provided support to the trial.
Copyright © 2021 PROpatient - a registry based randomised control trial associated with the Upper Gastrointestinal Cancer Registry, All rights reserved.

You are receiving this email because of your associations with / interest in the PROpatient trial, Monash University

Our mailing address is:
PROpatient Trial - Upper Gastrointestinal Cancer Registry 
School of Public Health and Preventive Medicine 
Monash University
Level 2, 553 St Kilda Road
Melbourne, Victoria 3004
Australia 






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