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June 2022

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The NR2F1 Foundation Board
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NR2F1 Foundation Board Members


Carlie Monnier


Stephanie Fountain

Vice President

Jennifer Higgins


Jeff Thelen


Erin Camper


Melissa Thelen

Honorary Director
Read More About our Growing Team!

A big thank you to Dr. Kyle Horning, Scientific Officer for the NR2F1 Foundation who applied for and won this grant for the Foundation!

The Orphan Disease Center (ODC) JumpStart Research Tools Matching Grant Program at the University of Pennsylvania, in partnership with Jackson Laboratory Rare Disease Translational Center will provide a one-time matching grant of $17,000 to support the creation of a mouse model to advance research on BBSOAS. 

Click HERE to help the NR2F1 Foundation in providing the required $8,000 in matching funds!

Animal models have become an important tool for studying human disease mechanisms. Mouse models are essential in the drug discovery process.  Many scientists in the early stages of researching rare and ultra-rare disorders, lack an existing mouse line to begin the necessary work on studying the rare disease mechanisms. Identifying these mechanisms is one of the first steps in developing treatments.

Donate to Further BBSOAS Research
NR2F1 Foundation Scientific & Family Conference a Success!
Click to Read More About the Hybrid Conference
Thank You to our
Conference Sponsors!
Click HERE for more Conference Photos
Two moms with two different experiences share their insights and what attending the April 2022 N2RF1 Conference meant to them.
Watch Emily's Interview
Watch Jennifer's Interview
We’re excited to share that the NR2F1 Foundation has earned a 2022 Gold Seal of Transparency with Candid!
Now, you can support our work with trust and confidence by viewing our

An intimate evening of beautiful cello music performed by Nadine Deleury, former principal cellist of the Detroit Opera House took place on June 9th. All ticket sales were donation-based and over $1,300 was raised to benefit the NR2F1 Foundation!
Guests sipped on refreshing beverages and grazed on delicious hors d'oeuvres as they listened to music from Bach Cello Suites to Six Danzones and other pieces uniquely for the cello.
Carlie Monnier, president of the NR2F1 Foundation and her husband Jeff Perman hosted this unique experience in their backyard garden in Royal Oak, MI.

Click HERE for a Brief Video of Nadine Playing
SHOP the NR2F1 Store
BBSOAS Families: Have you joined the NR2F1 Foundation Patient Registry?
Join NOW!
Applications to the Rifton Giveaway for signing up to the patient registry has closed. One lucky winner will be drawn Thursday, June 16th at 6p EST. 

You shop. Amazon donates to NR2F1.

You can support the NR2F1 Foundation every time you shop on Amazon! Visit Amazon Smile and select the NR2F1 Foundation as your charity of choice. With every purchase you make, Amazon will donate 0.5% to the NR2F1 Foundation.

NR2F1 Foundation YouTube Channel
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