The 2022 NR2F1 Family and Scientific Conference was held this year in Orlando, FL, on April 6 – 8. It was attended in-person and virtually by families from around the world who have a family member that has been diagnosed with BBSOAS. Ten countries were represented including Chile, Armenia, Germany, France, Israel, and Sweden, and 21 states in the US. Among the 180 in attendance, 70 were BBSOAS patients.

Carlie Monnier, President of NR2F1 Foundation, along with other board members kicked things off on Thursday by welcoming everyone and giving a history of BBSOAS and the foundation.

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