ERN BOND activities
ERN BOND will have the mid-term meeting on 21st November 2019, in Amsterdam. All BOND members are invited and will receive logistics and program information.
- ERN BOND Rare disease registries for the European Reference Networks
The Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) published in May the Annual Work Programme 2019 call for grants under the Third Programme for the Union’s action in the field of health (2014-2020), which includes the call for Rare disease registries for the ERNs.
This new grant aims to financially support ERNs, which have not been funded with the past call, in the preparation of their research and registries strategy, including developing a rare disease patient registry.
ERN BOND will apply to this call in order to further develop its registry activities.
Deadline for applications: 10 October 2019
For more information: https://ec.europa.eu/research/participants/data/ref/other_eu_prog/hp/hp_call_proposals_pj-2019_en.pdf