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EUCAN Newsletter

October 7, 2021

EUCAN Dissemination and Communication Group Newsletter

Welcome to the third edition of the EUCAN Dissemination and Communication Group's newsletter. The group consists of representatives from the six projects that were funded under the Horizon 2020 call SC1-BHC-05-2018 (CINECA, EUCANCan, EUCAN-Connect, euCanSHare, iReceptor Plus, ReCoDID). EUCANCan is represented by Anna-Lena Guske and Erika Granath, both from LINQ. A more in-depth presentation of each of the EUCAN projects can be found on the EUCANCan website.

In this edition, we are delighted to present the webinar International Data Sharing: Fostering Engagement, Transparency and Accountability which we organize together with the EUCAN ELSI Collaboratory on October 22, 2021. Registration for the free-of-charge event is open now. Inside this newsletter, you will also find a series of articles about recent events and achievements in the EUCAN projects and a list of publications by the consortia.

We hope you enjoy the read!

Best wishes,
Anna-Lena Guske and Erika Granath on behalf of the EUCAN Dissemination and Communication Group

PS. Please share this newsletter with your colleagues and network. 

Interviews with key members of the EUCAN consortia

Highlight articles

EUCANCan Annual Meeting 2021

The EUCANCan consortium got together virtually for a two-day annual meeting on May 20-21. The goal of the meeting was to take stock of the project’s progress to date and discuss upcoming milestones. Representatives of all EUCANCan’s 18 partners from Canada and Europe participated in the meeting, which was led by the Coordinator Dr David Torrents of Barcelona Supercomputing Center. Read more » 

EUCANCan: Onco Trials Track Streamlines Patient Recruitment for Cancer Clinical Trials

Onco Trials Track is a public online platform where patients and their clinicians can filter cancer clinical trials based on tumour type, biomarkers, research centre, etcetera. The platform aims to simplify the recruitment of patients to cancer clinical trials. Read more »

EUCANCan: Geniac offers a guidance document and pipeline container for improved health data management

After two years of intense work, Philippe Hupé of Institut Curie in Paris, France, and his team published the geniac documentation this summer. Geniac’s public webpage provides a comprehensive set of guidance documents and tools that help bioinformaticians and statisticians to harmonize how they prototype, develop and manage pipelines to analyze high-throughput data. Read more »

euCanSHare: launch of the first prototype of the platform

The first international platform for sharing cardiovascular data has been launched by euCanSHare. The platform holds metadata on social and demographic factors, “omics” (DNA/RNA/proteins), cardiac imaging, lifestyle behaviors, and clinical data including outcomes. Cardiovascular researchers are encouraged to use the platform to browse, deposit and analyse data. Read more »

euCanSHare: Dr. Zahra Raisi Estabragh wins the Royal Society of Medicine Cardiology President’s Gold Medal in Cardiology

Dr Zahra Raisi-Estabragh was recently awarded the Royal Society of Medicine (RSM) President’s Gold Medal in Cardiology in recognition of her work developing cardiovascular magnetic resonance (CMR) radiomics as a novel imaging biomarker. Read more »

EUCAN-Connect: Research Advancement through Cohort Cataloguing and Harmonization (ReACH)

Twenty-six Canadian studies are currently participating to the ReACH initiative. The initiative aims to leverage research on the Developmental Origins of Health and Disease (DOHaD) by providing the Canadian and international research community with a platform optimising data discoverability and facilitating co-analysis of harmonized data. Read more »

CINECA: "How FAIR are You" webinar series and hackathon

It is not always easy to determine how FAIR a dataset, piece of software, or other resource is, as the tools that assess compliance with FAIR principles are still being developed. Therefore, CINECA aims to facilitate the federated analysis of cohort data, which requires the data to be findable, accessible, interoperable and reusable (FAIR) with the "How FAIR are you" webinar series and hackathon. Read more »

CINECA blog: Powering up data discovery and access using the Data Use Ontology

This blog is the fourth in CINECA Global Alliance for Genomics and Health (GA4GH) standards series, presenting an overview of how GA4GH standards are being developed and implemented by CINECA. It will enable the analysis of input information by bringing the analysis to the data in a secure cloud-based infrastructure. Read more »

iReceptor Plus partners leverage 3D-derived vocabulary to demonstrate predictability of antibody-antigen binding

The iReceptor Plus Gateway platform clearly has a significant amount of power as an important resource to aggregate (“federate”) data for researchers around the world. This was demonstrated in a recent article entitled Neurological Manifestations of COVID-19 Feature T Cell Exhaustion and Dedifferentiated Monocytes in Cerebrospinal Fluid, which was published by a group of researchers led by Dr. Michael Heming. Read more »

ReCoDID: "Final Report on Future Data Sharing Specifications" from the Zika consortia

The ReCoDID team this month has been working to finalize the “Final Report on Future Data Sharing Specifications,” which will facilitate the use of their own high-dimensional epidemiological and omics data, and which will foster a better connection between researchers and the Open Science community. Read more »

Recent scientific publications

  • Schmidt, C.O., Struckmann, S., Enzenbach, C. et al. Facilitating harmonized data quality assessments. A data quality framework for observational health research data collections with software implementations in R. BMC Med Res Methodol 2163 (2021). Read more »
  • Devriendt T, Borry P, Shabani M. Data sharing in biomedical Sciences: A systematic review of incentives. Biopreservation and Biobanking. Jun 2021.219-227. Read more »
  • Devriendt T, Borry P, Shabani M. Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers. (2021) PLoS ONE 16(7). Read more »
  • SCORE2 working group and ESC Cardiovascular risk collaboration, SCORE2 risk prediction algorithms: new models to estimate 10-year risk of cardiovascular disease in Europe, European Heart Journal, Volume 42, Issue 25, 1 July 2021, Pages 2439–2454. Read more »
  • Amaro Oliveira, M., Costa, A., Rocha, A. (INESC TEC) and Aguiar, A. (University of Porto and INESC TEC.) Privacy preservation in a software ecosystem for the querying and processing of deep sequencing data. (2021) ERCIM News 126. Read more »

Upcoming Events

International Data Sharing: Fostering Engagement, Transparency and Accountability

Webinar | October 22, 2021 | 2-4pm CEST
The EUCAN D&C Group has teamed up with the EUCAN ELSI Collaboratory to host a joint webinar about how fostering stakeholder engagement can improve transparency and accountability in international sharing of health data. Register here »

The Beacon: a data discovery solution in genomics and health

Webinar | November 11, 2021 | 4-5pm CET
The CINECA project organizes a series of webinars about the Beacon, a protocol for sharing information about the presence or absence of a specific mutation in a given dataset. After the webinar on November 11, two further events are planned for November 16 and 17, respectively. Register here »

Funding Acknowledgment


CINECA has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 825775.
CINECA has received funding from the Canadian Institute of Health Research under CIHR grant number #404896


EUCAN Connect

EUCAN Connect has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 824989. 



EUCANCan has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 825835. EUCANCan also gratefully acknowledges funding from the Canadian Institute of Health Research (CIHR) under grant number CDF-160202


euCanSHare has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 825903
All Canadian project partners in the euCanShare consortium have been funded by the Canadian Institutes of Health Research and the Fonds de recherche du Québec – Santé


iReceptor plus 

This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 825821 and the Canadian Institutes of Health Research (CIHR). 



The ReCoDID project has received funding from European Union’s Horizon 2020 Research and Innovation Programme under Grant Agreement No.825746and is supported by the Canadian Institutes of Health Research, Institute of Genetics (CIHR-IG) under Grant Agreement N° 01886-000.

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